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 Post subject: Re: Freaking out a bit.
PostPosted: Fri Nov 05, 2010 3:53 pm 
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Happy thoughts! When I did this test they basically told me that it has a high rate of false negatives and even if it came back positive/negative one way or the other, there was a huge margin of error. In my experience doctors, especially private practices, are like joanna said-very prone to overscheduling tests insurance will pay for.


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 Post subject: Re: Freaking out a bit.
PostPosted: Fri Nov 05, 2010 4:12 pm 
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(((hugs)))

Those test as have a high percentage of false positives and (to me) it seems like their only purpose it to freak out pregnant women. I personally wouldn't have an amnio but I wouldn't terminate if the baby had downs either. I would ask how the results would affect your care or labor and make your choice based on the answer.


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 Post subject: Re: Freaking out a bit.
PostPosted: Fri Nov 05, 2010 6:02 pm 
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Jenna, did you do the test where they measure the fold behind the neck? It's an u/s. If you did and that came out ok I'd say you don't have anything to worry about. The odds are extremely in your favor as is. Good luck and hugs!

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 Post subject: Re: Freaking out a bit.
PostPosted: Fri Nov 05, 2010 6:56 pm 
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Violets in bloom wrote:
Jenna, did you do the test where they measure the fold behind the neck? It's an u/s. If you did and that came out ok I'd say you don't have anything to worry about. The odds are extremely in your favor as is. Good luck and hugs!


Yes that was part of the test. This baby measured 2.8 which is normal but still close to a 3.0 measurement which if I'd measured that I would have been sent straight off for more testing that same day.

I do feel the odds are in my favor now...but you never know.

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 Post subject: Re: Freaking out a bit.
PostPosted: Fri Nov 05, 2010 10:11 pm 
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Good luck! I would push for a more in depth ultrasound over an amnio first. Less risk there. At least they didn't try to get you to do a chorionic villis sampling. The risk with that is huge.

The amnio can rupture your membranes, but normally it doesn't. The amniotic sack has two layers and can seal itself back up.

good luck! i am thinking happy thoughts!


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 Post subject: Re: Freaking out a bit.
PostPosted: Sat Nov 06, 2010 5:15 pm 
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JENNA wrote:
Violets in bloom wrote:
Jenna, did you do the test where they measure the fold behind the neck? It's an u/s. If you did and that came out ok I'd say you don't have anything to worry about. The odds are extremely in your favor as is. Good luck and hugs!


Yes that was part of the test. This baby measured 2.8 which is normal but still close to a 3.0 measurement which if I'd measured that I would have been sent straight off for more testing that same day.

I do feel the odds are in my favor now...but you never know.



Oh, I see. Sometimes I think we know too much. A friend of mine's baby had a Down's marker on her baby's heart during an u/s. She got so upset and even got a bloody nose over the stress. She didn't get an amnio and they went to a specialist for the heart. He thought it was unlikely but it had her worried the whole time. He didn't have Down's and is now a thriving 3 year old.

I didn't do the nuchal fold test. I did do the blood test and because I was going to be 35 when I delivered I did a level 2 ultrasound.

Keep us updated.

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 Post subject: Re: Freaking out a bit.
PostPosted: Sun Nov 07, 2010 10:19 am 
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Oh these tests can often cause more harm than good. I would be willing to bet your little one is perfect. The odds are definitely in your favor. I am 37 and prior to my two screenings they told me my risk for downs was 1 in 121, um yikes! Sounds scary, but again the likelihood is still low. Both of my screenings came back normal (very very low risk) but of course I still worry.

When I was carrying the twins they had downs soft markers on the ultrasound, my doc wasn't really worried, but I sure was! They were born perfectly healthy.

Try not to stress (easier said than done, I know)...

Hugs, momma...

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 Post subject: Re: Freaking out a bit.
PostPosted: Sun Nov 07, 2010 8:26 pm 
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Hugs to you, Mama! Keep us posted and I know that this is way easier said than done, but please try not to sweat these tests! I have 3 kids (a soon to be 20 year old, a six year old and a 6 month old) and each pregnancy there was a new and improved means to scare the shiitake out of me, but in the end (and after a buttload of needless worry, might I add) I gave birth to beautiful, healthy and happy babies.

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 Post subject: Re: Freaking out a bit.
PostPosted: Fri Nov 12, 2010 10:22 am 
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I went to the genetic counselor yesterday where things were explained and i'm feeling a ton better about this pregnancy now.

The counselor that gave me the results over the phone said that my ultrasound results were normal but close to the abnormal range...but still normal. I go to speak to another counselor yesterday and she was awesome and explained the blood results to me which were.......Normal. The numbers were off but only ever so slightly and if she would just have seen the blood results she would say everything was fine. So I ask then what made my chances go up so high and she says the ultrasound results which the Dr. said was normal and the other counselor said was normal! AND she says well it is normal. what the fizzle! So frustrating. I basically have a 0.52% chance of having a baby with downs syndrome.

So confusing, but myself, Peter and our family's feel better now. I'm skipping the amnio because i'm too afraid of getting an infection since I tend to get them easily. I'll get the 20 week ultrasound 2 days before Christmas and if that doesn't come back normal then I might get the amnio then. We shall see. I'm just going to try and forget about all of this until then and try and enjoy this pregnancy since we are pretty confident that it will be our last.

Thanks for all your support and good thoughts!

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 Post subject: Re: Freaking out a bit.
PostPosted: Fri Nov 12, 2010 11:23 am 
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Phew! That sounds very confusing. Take care of yourself and relax.


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 Post subject: Re: Freaking out a bit.
PostPosted: Fri Nov 12, 2010 5:39 pm 
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Yay for normal! Relax and enjoy the holidays! One last Xmas with Reno as an only child!


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 Post subject: Re: Freaking out a bit.
PostPosted: Fri Nov 12, 2010 7:03 pm 
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Definitely sounds like you can stop the massive worrying. Yay! It seems like it should be their number one priority not to scare the parents and, yet, it never seems to happen that way.


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 Post subject: Re: Freaking out a bit.
PostPosted: Fri Nov 12, 2010 7:29 pm 
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Glad you got some more information. Enjoy the holidays.

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 Post subject: Re: Freaking out a bit.
PostPosted: Fri Nov 12, 2010 8:13 pm 
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Megan My Dear wrote:
One last Xmas with Reno as an only child!


That's so weird to think about!

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 Post subject: Re: Freaking out a bit.
PostPosted: Sat Nov 13, 2010 6:21 am 
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I'm glad you're feeling better about this, but it did sound unnecessarily traumatizing.

<3 <3 <3

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 Post subject: Re: Freaking out a bit.
PostPosted: Tue Nov 30, 2010 6:26 pm 
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Hold my hand PPK!

I couldn't take the anxiety plus the uncertainty anymore with my results from the 1st tri down syndrome screening so I set up an appointment for an amnio 2 weeks from today. I have to know otherwise I'm going to drive myself nuts for the rest of this pregnancy and it's not healthy for me. I also need my husband to know because he IS driving me nuts. We still haven't told most of our friends or family that I'm pregnant, because of this (I want to tell people he doesn't yet) and whenever we do tell someone he starts off saying "Well we can't count on it.....but Jenn's pregnant." I could punch him in the face sometimes.

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 Post subject: Re: Freaking out a bit.
PostPosted: Tue Nov 30, 2010 6:32 pm 
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Sending you a ton of good thoughts <3 I hope you can tell him that he is driving you crazy, because the one thing I know from seeing you guys together is that he is completely in love with you (its supercute), and I know its totally not his intention to be douchey.

Brett is kind of similar in that he seems to hate to be completely positive about anything and is scared about getting hurt if he lets himself believe that something good could happen. Sometimes I want to smack him too. Repeatedly.

Let me know if we need to stage an intervention <3

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 Post subject: Re: Freaking out a bit.
PostPosted: Tue Nov 30, 2010 6:55 pm 
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We're here for you, Jenna! I totally get your need to schedule the amnio so get your anxiety to go away. Whatever keeps you sane and relaxed, that is the way to go. Let your guy know how you feel about his way of introducing the pregnancy.

<3

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 Post subject: Re: Freaking out a bit.
PostPosted: Tue Nov 30, 2010 7:10 pm 
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The wondering would flip me out too. Normal pregnancies are full of too much worry, anytime they even hint at a problem, it's basically torture. I'm thinking happy, healthy thoughts for you guys <3

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 Post subject: Re: Freaking out a bit.
PostPosted: Tue Nov 30, 2010 9:17 pm 
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I totally hear you on needing to know. Thinking of you, hoping and praying that everything is just fine.


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 Post subject: Re: Freaking out a bit.
PostPosted: Tue Nov 30, 2010 9:24 pm 
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Good luck, Jenna. Peace of mind during pregnancy is so invaluable!

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 Post subject: Re: Freaking out a bit.
PostPosted: Tue Nov 30, 2010 10:50 pm 
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we're here for you!! hand holding commenced!


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 Post subject: Re: Freaking out a bit.
PostPosted: Tue Nov 30, 2010 11:01 pm 
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good luck jenna! i'm sure everything'll be okay -- those first semester screenings have a high false positive rate!


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 Post subject: Re: Freaking out a bit.
PostPosted: Wed Dec 01, 2010 9:50 am 
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I <3 all of you! Thanks.

Tofulish wrote:


Brett is kind of similar in that he seems to hate to be completely positive about anything and is scared about getting hurt if he lets himself believe that something good could happen. Sometimes I want to smack him too. Repeatedly.

Let me know if we need to stage an intervention <3


Peter is like that also. He knows he is driving me crazy but I let it slide most of the time because he is all anxious about this too. If it were an everyday thing then an intervention would be in order.

On the other extreme is my Maa. Every time its mentioned she rapidly shakes her head no and says "no, no, no, the baby does not have down syndrome" She's most likely right but her extreme denial of what could be drives me I think even more insane than Peter! I just can't win. :) Thank goodness the rest of our families are being cool and neutral about this.

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 Post subject: Re: Freaking out a bit.
PostPosted: Thu Dec 02, 2010 1:04 am 
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Good thoughts and prayers for you guys. Keep us updated.


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