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 Post subject: Re: The Migraine Thread
PostPosted: Fri Mar 29, 2013 10:04 pm 
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I've suffered migraines my entire life and was taking preventative medication as well as emergency medication. The only emergency medication that worked for me was Maxalt and I was using it for years until all of a sudden my insurance said it wouldn't cover it anymore. So I tried another medication that made me so sick to the point that I was laying in bed in pain for hours. I stopped taking everything and for a while was doing fine (a year maybe?) and now all of a sudden it's coming back. I don't know if it's dehydration or lack of sleep or not getting enough of the right nutrients or maybe just that my migraines are coming back.

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 Post subject: Re: The Migraine Thread
PostPosted: Mon Apr 01, 2013 2:53 pm 
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Quote:
appifanie wrote:
yeah that is horrible, joshua! non-stop?

a-yup. it varies in intensity obviously (bad sleep, dehydration, etc), but it's always there. I've learned to manage it over the years, but it's still a thing


If you have a constant headache in the same place that never goes away, just gets better or worse, you should look into trigger point therapy. It's similar to Botox, but instead of paralyzing the muscle it anesthetizes it. I get both weather-related migraines and a constant headache from inflamed trigger points, and a combination of trigger point injections with dry needling (breaking up the scar tissue) and doing the proper stretches in exercises has gotten rid of 99.9% of what used to be a constant headache.


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 Post subject: Re: The Migraine Thread
PostPosted: Sat Apr 06, 2013 11:04 pm 
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I've been doing so great with my headaches for the last however long. By which I mean, my headaches had been mostly at night when I'm getting in bed anyway and only bothering me during the day a few times a week. Recently they've gotten bad again and everything I eat seems to set off the pain. (Plus I'm super nauseated all time so I don't feel like eating and no food isn't a help either.)

I'm fairly sure at this point that sugar isn't helpful nor is oil in large quantities. The difficulty is that I am having trouble finding enough safe foods that I don't end up calorie deficient. (I can't really eat in volume either so in the eating plan I worked out with the dietician, I had things like a cupcake or a cookie several times a week to help keep my weight up. That stuff is pretty clearly causing problems now with my overall increased trigger load, so I don't know what to do. & I don't have access to a dietician anymore.)

blah.


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 Post subject: Re: The Migraine Thread
PostPosted: Sun Apr 14, 2013 9:16 pm 
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Uggggh guys I've had a migraine at some point every day since Thursday. My Migranal isn't working at all anymore. My OTC migraine stuff helps my head feel better for a few hours but I still feel like shiitake generally and then it wears off. In a desperate moment I bought some herbal stuff that I doubt will do anything and I'm sipping ginger kombucha for the nausea and I took some B vitamins and magnesium and DHA because I feel like I've read vague things about all those things so why the hell not. I just want to feel like a person again.

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 Post subject: Re: The Migraine Thread
PostPosted: Tue Apr 16, 2013 1:32 pm 
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Migraine day 5! Maybe I'll throw it a party when it's a week old.

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 Post subject: Re: The Migraine Thread
PostPosted: Tue Apr 16, 2013 2:06 pm 
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 Post subject: Re: The Migraine Thread
PostPosted: Tue Apr 16, 2013 2:10 pm 
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strawberryrock wrote:
Migraine day 5! Maybe I'll throw it a party when it's a week old.


I feel you there strawberryrock! I had a 5 day migraine last week (my body didn't appreciate the constant onslaught of stress, sobbing, lack of sleep, sobbing, not eating, sobbing after losing my Cleo.

I really hope your migraine ends very soon!


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 Post subject: Re: The Migraine Thread
PostPosted: Thu Apr 25, 2013 8:36 pm 
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Hope you're all doing okay!

I had a doozy today - menstrual migraine - the worst. Took excedrin, then my relpax, then aleve, then a head patch. Oy.

Going to attempt a juice cleanse starting monday - usually being hungry gives me migraines, but if I have migraines anyway then what the hell, right?

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 Post subject: Re: The Migraine Thread
PostPosted: Mon Apr 29, 2013 1:29 pm 
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Hello fellow migraineurs
I'm posting here to give you all some hope.
I'm nearly 52 and my migraines started when I was about 6. They started as abdominal migraines, I would be sick and running to the loo, and I ended up with a headache. Then when I started my periods the migraines became fully blown ones, classic migraines, no aura, just pain, sensitivity to light, still bad stomach and sickness, and osmophobia (sensitivity to smells).
I would get migraines 2 a month, sometimes varying in strength. I took migraleave, imagran etc.
Then about 10 years ago, everything changed. My migraines were hitting 20-25 a month and I ended on topamax and maxalt melt.
I think this coincided with my menopause, and it was hell. But on topamax I went back to the 2 migraines a month.
And the 2 are very different. One is the horrid, head exploding, throwing up, migraine. Take a maxalt, sleep and it goes. The other is this long, dull, thud, migraine. Lasts up to a week. Maxalts, ibuprofen, paracetamols, any drugs, do not work.
But, there is, for some, a light at the end (of the age) tunnel. I'm out of the menopause and I seem to be slipping out of my migraines slowly. I haven't taken a maxalt for a while. My long migraines still happen, but maybe every 2 months now.
What I am concerned about is my GP wants me to come off the topamax. What if, by coming off it, my migraines come back? How scary will that be. So I'm about to send an email to my lovely consultant, as he will help me.
Anyway, just thought I'd let you know that there is good new to be had.
I'm not sure about everyone on here, but my migraines are hereditary. My mother had them, and my grandmother too
Wish everyone a good, migraine free day.

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 Post subject: Re: The Migraine Thread
PostPosted: Fri May 03, 2013 4:30 pm 
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Hi Mic! The first migraine I remember was during a driver's lesson when I was 16. Mine have been worse lately too, like that - the menstural ones are a day or two or three, and then I have some ovulation linked ones and some caused by triggers. I got mine from my mom, and hers stopped at menopause too, but that gives me 20 years or so. Alas.

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 Post subject: Re: The Migraine Thread
PostPosted: Sat May 04, 2013 6:41 pm 
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I had a mild migraine yesterday, but I managed without medicine (I forgot my sumatriptan at home, so I was on codeine because that was the only thing we had here) and I was okay for a few hours but had to go home from an art show and felt so horrible. Woke up several times during the night with mind numbing headaches, and this morning too. It disappeared but when I went out for a dinner party, I went into a tiny grocery store and I just wandered around for about 20 minutes because I felt spacey and totally forgot what I was doing and I was so disoriented and confused. This seems to be happening pretty often around my migraines.. Do you guys experience anything similar? I am pretty sure I'm not traffic-safe when I feel that way. Sometimes I just feel sort of lost, like I KNOW where I'm supposed to go, but I don't really understand? It's hard to explain. I mean, one thing is being disoriented when I'm actually having a migraine, but before/after? It's usually for at least a few hours in the beginning or in the end. It freaks me out.


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 Post subject: Re: The Migraine Thread
PostPosted: Sun May 05, 2013 1:06 pm 
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appifanie wrote:
Hi Mic! The first migraine I remember was during a driver's lesson when I was 16. Mine have been worse lately too, like that - the menstural ones are a day or two or three, and then I have some ovulation linked ones and some caused by triggers. I got mine from my mom, and hers stopped at menopause too, but that gives me 20 years or so. Alas.

Hi appifaine. My migraine specialist mentioned that your hormones change slightly every 10 years or thereabouts, thus your migraines do too.
I noticed mine changing slightly, the long one didn't used to be long, just dull and there, then it lengthened. Now it really is the only one I have.
He, and other specialists over here (UK) have also discussed the chocolate theory, that is that chocloate doesn't cause a migraine, rather migraine causes a chocolate eating, thus we link chocolate with migraine.
I am not a chocolate eater, so pre-migraine I stuff my face with sweet crepe, anything I can get hold of, and then a day or two later I have a migraine.
For most people, the sweetie craving is sated by chocolate, therefore chocolate = migraine.
I know some people do get migraines from chocolate, but the theory is a good one IMHO.
Articles:
http://migraine.com/migraine-symptoms/food-cravings/
http://cep.sagepub.com/content/17/8/855.short
There are a lot more online but they are interesting.

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 Post subject: Re: The Migraine Thread
PostPosted: Sun May 05, 2013 1:11 pm 
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smoothie wrote:
I had a mild migraine yesterday, but I managed without medicine (I forgot my sumatriptan at home, so I was on codeine because that was the only thing we had here) and I was okay for a few hours but had to go home from an art show and felt so horrible. Woke up several times during the night with mind numbing headaches, and this morning too. It disappeared but when I went out for a dinner party, I went into a tiny grocery store and I just wandered around for about 20 minutes because I felt spacey and totally forgot what I was doing and I was so disoriented and confused. This seems to be happening pretty often around my migraines.. Do you guys experience anything similar? I am pretty sure I'm not traffic-safe when I feel that way. Sometimes I just feel sort of lost, like I KNOW where I'm supposed to go, but I don't really understand? It's hard to explain. I mean, one thing is being disoriented when I'm actually having a migraine, but before/after? It's usually for at least a few hours in the beginning or in the end. It freaks me out.

Hope you feel better now.
I used to get very out of it after my migraines, like I wasn't on this planet. Very confused. And maxalt Melt makes my skin prickly, a feeling like sandpaper, but it gets rid of my migraine so I always take it.
Beforehand I'd just go grey and with a bad attack I would slur. I'm sure sometimes people thought I was drunk.
Migraines are the pits and I really get pigged off with people who have headaches or hangovers and say 'I've got a migraine' or people who say 'migraines, they're just bad headaches' - arghhhh.

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 Post subject: Re: The Migraine Thread
PostPosted: Sun May 05, 2013 3:43 pm 
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I don't usually feel confused, but I often feel disoriented or spaced (as if I'm watching from a distance). Especially at the end of an episode. I also get migraine "hangovers" (not the actual name, but it's what it feels like). For me the biggest thing (you know, other than the pain and the puking) is that I get really really weak physically. Often it starts before the pain really sets in.


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 Post subject: Re: The Migraine Thread
PostPosted: Sun May 05, 2013 7:22 pm 
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smoothie wrote:
I had a mild migraine yesterday, but I managed without medicine (I forgot my sumatriptan at home, so I was on codeine because that was the only thing we had here) and I was okay for a few hours but had to go home from an art show and felt so horrible. Woke up several times during the night with mind numbing headaches, and this morning too. It disappeared but when I went out for a dinner party, I went into a tiny grocery store and I just wandered around for about 20 minutes because I felt spacey and totally forgot what I was doing and I was so disoriented and confused. This seems to be happening pretty often around my migraines.. Do you guys experience anything similar? I am pretty sure I'm not traffic-safe when I feel that way. Sometimes I just feel sort of lost, like I KNOW where I'm supposed to go, but I don't really understand? It's hard to explain. I mean, one thing is being disoriented when I'm actually having a migraine, but before/after? It's usually for at least a few hours in the beginning or in the end. It freaks me out.


Oh the ones you wake up with are the worst, aren't they? Ugh. Also, sometimes my migraines make me spacy stupid, like I can't think of and use the right words, but nothing like that. Also sometimes after I get these weird spacey/tired postdromes. I call them migraine hangovers as well. Last time my face felt kind of weird.

mictheotterspotter wrote:
Migraines are the pits and I really get pigged off with people who have headaches or hangovers and say 'I've got a migraine' or people who say 'migraines, they're just bad headaches' - arghhhh.


Yeah my husband used to underestimate mine and then he got one one day and was more understanding after that.

Also, thanks for the links! (I'm using the world also a lot today) I have actually sometimes wondered is it the crepe that makes the migraine, or does getting a migraine make me eat the crepe. And "The Migraine Brain" by Bernstein is my fav migraine book and she says that they're always changing. Funsies.

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 Post subject: Re: The Migraine Thread
PostPosted: Wed May 08, 2013 6:52 pm 
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Ugh, I've been having migraines (sometimes multiple migraines) for several consecutive days. A few months ago, my g.p. prescribed a pain killer for my migraines....which is all fine and dandy, except for when I have to drive someplace. Which is just about everyday :-(

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 Post subject: Re: The Migraine Thread
PostPosted: Thu May 09, 2013 3:27 pm 
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Queen Couscous wrote:
Ugh, I've been having migraines (sometimes multiple migraines) for several consecutive days. A few months ago, my g.p. prescribed a pain killer for my migraines....which is all fine and dandy, except for when I have to drive someplace. Which is just about everyday :-(

Are your migraines which you have for several days, the same migraine which is rebounding?
I used to have a migraine, take a triptan, it would go, and then the next day, or even a fair few hours later, I'd get what i thought was another migraine.
My specialist said this was a common thing and that it was the same migraine rebounding, kind of sneaking away, fooling me into thinking it had gone and then coming back and, quite literally, smacking me around the head!
I ended up taking different triptans, and also double dosing on ibuprofen, which worked.
But he also told me not to over take the painkillers and triptans as they cause rebound headaches, which hurt like hell, especially after migraines.
Blooming bodies, confusing things eh!

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 Post subject: Re: The Migraine Thread
PostPosted: Tue May 14, 2013 10:29 am 
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Silent migraine? What sort of fresh hell is this?!


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 Post subject: Re: The Migraine Thread
PostPosted: Tue May 14, 2013 11:53 am 
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my head hurts, i even feel it in my ears, my eyes are throbbing, i want a nap in a cold dark room.

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 Post subject: Re: The Migraine Thread
PostPosted: Thu May 16, 2013 10:10 am 
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8ball wrote:
Silent migraine? What sort of fresh hell is this?!


you have me curious... what does a silent migraine entail?


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 Post subject: Re: The Migraine Thread
PostPosted: Sat May 25, 2013 4:08 pm 
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So Totally Yiffy
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8ball wrote:
Silent migraine? What sort of fresh hell is this?!

I'm confused too.
I thought maybe I'd written this but cannot see it anywhere.
But, on googling it, I think it's something my hubby and my brother suffer. It's the migraine without the thumping head.
Hubby gets the aura - visual disturbances that knock him for six, then sometimes he will get a headache, nothing else, or just feel crepe, but he doesn't get a full blown migraine.
Thus it's a migraine which is in the background, sort of dormant, silent.
Wiki link - http://en.wikipedia.org/wiki/Acephalgic_migraine

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 Post subject: Re: The Migraine Thread
PostPosted: Sun May 26, 2013 6:22 am 
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Queen Couscous wrote:
Ugh, I've been having migraines (sometimes multiple migraines) for several consecutive days. A few months ago, my g.p. prescribed a pain killer for my migraines....which is all fine and dandy, except for when I have to drive someplace. Which is just about everyday :-(


is it just a serious pain killer like codeine or something? I had a few docs prescribe stuff like that for me, and it never worked. Usually something like that indicates that the doc has no idea wth to do about migraines. new doc, or neuro?

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 Post subject: Re: The Migraine Thread
PostPosted: Fri Jun 07, 2013 2:39 pm 
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Has anyone had experience with taking Imitrex (sumitriptan) and it working the first couple times you take it, and then not really after that? I don't think I take it too much (maybe once every week or two). I just don't understand.

Also, I'm trying to grow feverfew in my garden (if it actually germinates...) because I've heard it helps with migraines. Has it worked/not worked for anyone here?


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 Post subject: Re: The Migraine Thread
PostPosted: Fri Jun 07, 2013 7:03 pm 
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Imitrex makes my heart hurt, so I've only had it the one time. I do find that most of my migraines go away fairly easily but there are some that take more time/meds/whatever. (I take relpax + aleve) You're not supposed to take triptans more than twice a week (that's what my doc said) but I don't think that would affect the efficacy, just increase rebounds.

I had liquid feverfew and I think I remember it working but I really suck at some of my alternative treatments/preventative care.

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 Post subject: Re: The Migraine Thread
PostPosted: Sat Jun 08, 2013 12:09 am 
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I had a migraine this week for the first time in my life at age 29! What the hell? It was such a classic migraine that I felt like I must have been some kind of research subject experiencing all symptoms exactly how they were supposed to happen. First there was the aura and the photophobia, then half an hour later the headache, which lasted two days, then I definitely had sort of a migraine hangover for another day. Please tell me there's someone out there who has had one random migraine and then never had another one again? I do not want this to become a part of my life!


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