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fupapack
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Post subject: psoriasis support thread! Posted: Fri Nov 12, 2010 6:00 pm |
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| Drinks Wild Tofurkey |
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Joined: Wed Oct 20, 2010 8:43 pm Posts: 2781 Location: mt. pleasant
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gross right? i've heard the anti inflammatory properties of turmeric help. I haven't noticed any improvement.
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tinglepants!
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Post subject: Re: psoriasis support thread! Posted: Fri Nov 12, 2010 6:11 pm |
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| Chip Strong |
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Joined: Wed Oct 20, 2010 6:08 pm Posts: 996 Location: Notavandownbytheriver
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I know you have long hair, but using solid shampoo has really helped me. I like Lush's squeaky green...A few drops of tea tree oil at night will help, too. Also, not letting my hair air-dry (even though the blow dryer is a pain).
_________________ "So often I wish Adam were a real boy." - interrobang?! "If he was you'd hear him farting at the back of your yoga class." - 8ball
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fupapack
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Post subject: Re: psoriasis support thread! Posted: Fri Nov 12, 2010 6:23 pm |
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| Drinks Wild Tofurkey |
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Joined: Wed Oct 20, 2010 8:43 pm Posts: 2781 Location: mt. pleasant
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i noticed the blow dryer thing too! i didn't know if i was crazy! There is a Lush right next to me so I can try that product soon. How often do you wash your hair? I oscillate between never and just using conditioner and using dandruff/coal tar shampoo/dr.bronners tea tree.
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fezza
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Post subject: Re: psoriasis support thread! Posted: Fri Nov 12, 2010 6:27 pm |
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| Thinks chickens are assholes |
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Joined: Wed Oct 20, 2010 1:17 pm Posts: 5324
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Don't call it gross, it's an autoimmune disease. I hate it when psoriasis sufferers put themselves down, there's enough people out there to do that for you. Stop perpetrating the ignorance!
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tinglepants!
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Post subject: Re: psoriasis support thread! Posted: Fri Nov 12, 2010 6:28 pm |
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| Chip Strong |
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Joined: Wed Oct 20, 2010 6:08 pm Posts: 996 Location: Notavandownbytheriver
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I wash my hair about every other day. I try to use conditioner only on the ends of my hair and I stay away from any sort of product.
I think psoriasis is fungal? I could be wrong but if that's the case, it makes sense that you'd want to keep your head dry.
_________________ "So often I wish Adam were a real boy." - interrobang?! "If he was you'd hear him farting at the back of your yoga class." - 8ball
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biorobotics
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Post subject: Re: psoriasis support thread! Posted: Fri Nov 12, 2010 7:08 pm |
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| Top of the food chain & doesn't need to prove it |
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Joined: Sat Oct 23, 2010 7:56 pm Posts: 636 Location: ontario
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does anyone else have it in other places besides their scalp? i have patches/spots pretty much all over my body; i've found jojoba oil to be the best thing, but i'm still flaky all the time.
_________________ everything stays the same, only more so.
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fupapack
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Post subject: Re: psoriasis support thread! Posted: Fri Nov 12, 2010 7:14 pm |
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| Drinks Wild Tofurkey |
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Joined: Wed Oct 20, 2010 8:43 pm Posts: 2781 Location: mt. pleasant
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in the past i had it on my face! and in the space where my leg and vulva meet. But since i've become an adult just my hair, though i suspect i've had bouts in my nails.
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fezza
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Post subject: Re: psoriasis support thread! Posted: Fri Nov 12, 2010 7:23 pm |
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| Thinks chickens are assholes |
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Joined: Wed Oct 20, 2010 1:17 pm Posts: 5324
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biorobotics wrote: does anyone else have it in other places besides their scalp? i have patches/spots pretty much all over my body; i've found jojoba oil to be the best thing, but i'm still flaky all the time. Have you seen a doctor about it? I sometimes get it on my face and the occasional patch on my leg. One of my friends is on a immuno-suppressant drug, hers is very severe and my ex-husband had large patches on his elbows & knees (plaque psoriasis).
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CNA
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Post subject: Re: psoriasis support thread! Posted: Sat Nov 13, 2010 1:31 am |
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| Bathes in Braggs |
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Joined: Wed Oct 20, 2010 4:42 pm Posts: 1372 Location: sf
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I have a small psoriasis patch on my shin; it's gotten way smaller than it was a year ago (and waaay smaller than two years ago), but it's still horribly itchy and flaky and bleh. Makes me always hide my legs - and I love my legs! I used to wear dresses and shorts (when the weather's right, of course), but this spring/summer I only wore things to cover my mean plaque. :(
I don't have scalp psoriasis, but I do get dandruff. I always stress out that it might turn into psoriasis or something... but the thing that triggers more itchiness, flaking, irritation is stress. It sucks.
I did find that if I mess with what I eat, kind of like an elimination diet, my psoriasis gets somewhat better if I keep things low in oil (for example: I can eat whole avocados just fine, but adding olive oil to a salad makes my rash extra angry), and low in refined sugar/refined carbs, my leg plaque won't be as inflamed or itchy.
I definitely do not have a really severe case, but I still wish I didn't have to deal with this bullshiitake. :(
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fupapack
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Post subject: Re: psoriasis support thread! Posted: Sun Nov 21, 2010 12:13 am |
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| Drinks Wild Tofurkey |
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Joined: Wed Oct 20, 2010 8:43 pm Posts: 2781 Location: mt. pleasant
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i think my anti inflammation diet is working!!
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vegimator
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Post subject: Re: psoriasis support thread! Posted: Sun Nov 21, 2010 12:22 am |
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| Mispronounces Daiya |
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Joined: Wed Oct 20, 2010 1:56 pm Posts: 1410 Location: oakland
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fupapack wrote: i think my anti inflammation diet is working!! What does the diet consist of?
_________________ Like the beleaguered people of sub-Saharan Africa, I'll just go to Denny's. Solidarity! -mumbles
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baps
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Post subject: Re: psoriasis support thread! Posted: Sun Nov 21, 2010 7:28 am |
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| Ninja Master |
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Joined: Wed Oct 20, 2010 5:00 pm Posts: 3491 Location: Surrey, UK
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My mum has had it her whole life. She gets patches on her arms and legs and won't wear anything that shows off arms or legs because she's so embarrassed of it (it's really not that bad but she is very conscious of it).
She's had everything going from the doc and nothing seems to work for her, or it'll clear up a bit and then come right back.
_________________ I sure do love pumpkins, Cotton.
Make up blog: http://love-lipstick.blogspot.com Food blog: http://alienontoast.blogspot.com
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CNA
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Post subject: Re: psoriasis support thread! Posted: Mon Nov 22, 2010 11:57 pm |
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| Bathes in Braggs |
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Joined: Wed Oct 20, 2010 4:42 pm Posts: 1372 Location: sf
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vegimator wrote: fupapack wrote: i think my anti inflammation diet is working!! What does the diet consist of? I would like to know, too! And I hope it continues to work for you! :)
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CNA
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Post subject: Re: psoriasis support thread! Posted: Fri Dec 03, 2010 2:50 am |
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| Bathes in Braggs |
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Joined: Wed Oct 20, 2010 4:42 pm Posts: 1372 Location: sf
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I've been applying fresh aloe vera stuff (straight from the fresh leaves) to my plaque for about a month, and today I noticed that it actually looks better, less inflamed/flaky, and maybe smaller? I don't have pics to verify, but I'm being hopeful. I always use coconut oil on it, but putting aloe vera on before the oil seems to have helped. Just thought I'd put it here, in case anyone wanted to try it. :)
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fupapack
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Post subject: Re: psoriasis support thread! Posted: Fri Dec 03, 2010 9:03 am |
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| Drinks Wild Tofurkey |
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Joined: Wed Oct 20, 2010 8:43 pm Posts: 2781 Location: mt. pleasant
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I've used aloe before, it def. has an immediate cooling effect.
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Alina
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Post subject: Re: psoriasis support thread! Posted: Fri Dec 03, 2010 9:19 am |
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| Attended Chelsea Clinton's Wedding |
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Joined: Wed Oct 20, 2010 1:33 pm Posts: 216 Location: Orlando, FL
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I don't get it on my scalp but instead on my hands, so I just cover myself in hydrocortisone with aloe for a few days and it usually goes away.
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fupapack
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Post subject: Re: psoriasis support thread! Posted: Tue Dec 28, 2010 1:17 am |
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| Drinks Wild Tofurkey |
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Joined: Wed Oct 20, 2010 8:43 pm Posts: 2781 Location: mt. pleasant
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Muffin-Tuffin
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Post subject: Re: psoriasis support thread! Posted: Tue Dec 28, 2010 1:31 am |
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| Santa is a WELFARIST! |
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Joined: Wed Oct 20, 2010 6:28 pm Posts: 1035 Location: PDX
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If you drink beer, I read (from a study supposedly) that it makes psoriasis worse.
_________________ "Produce pot pie is my loved. I suchlike it with gust pastry on top tho', not a dry crust."
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newsie15
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Post subject: Re: psoriasis support thread! Posted: Wed Jan 05, 2011 11:59 pm |
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| Addicted to B12 Enemas |
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Joined: Tue Oct 26, 2010 6:04 pm Posts: 242 Location: the Northeast
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It's an autoimmune disease? Oh goodness. I have so many fungal and other issues. Maybe I have a weak immune system.
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biorobotics
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Post subject: Re: psoriasis support thread! Posted: Thu Jan 06, 2011 6:56 pm |
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| Top of the food chain & doesn't need to prove it |
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Joined: Sat Oct 23, 2010 7:56 pm Posts: 636 Location: ontario
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i've run out of corticosteroid cream, so the spots on my arms, shoulders, back, stomach, and chest have gotten noticeable. i have cream that's supposed to control the dry/scalyness, but without the corticosteroid, it's still red. at least it doesn't itch.
_________________ everything stays the same, only more so.
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maximumrockandlol
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Post subject: Re: psoriasis support thread! Posted: Thu Jan 06, 2011 8:23 pm |
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| Attended Chelsea Clinton's Wedding |
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Joined: Thu Oct 21, 2010 1:55 am Posts: 193 Location: columbus
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That cream makes me agitated when I use it, does anyone else get that? It does help when you get a super nasty spot though.
_________________ ...
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fupapack
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Post subject: Re: psoriasis support thread! Posted: Fri Jan 07, 2011 3:23 am |
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| Drinks Wild Tofurkey |
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Joined: Wed Oct 20, 2010 8:43 pm Posts: 2781 Location: mt. pleasant
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i've luckily have only had patches bad a few times so i don't use creams. i used to have a spot on my face for years then it went away after puberty. now it's my scalp. i kinda want to shave it again to see the plaques. but i don't currently have a flare up. yay! if i don't get some sleep soon i know it will be back.
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fezza
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Post subject: Re: psoriasis support thread! Posted: Fri Jan 07, 2011 5:01 am |
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| Thinks chickens are assholes |
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Joined: Wed Oct 20, 2010 1:17 pm Posts: 5324
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You need to be careful what creams you use and how often you apply them, long term, steroid creams make the problem worse.
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guacamolegirl
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Post subject: Re: psoriasis support thread! Posted: Fri Jan 07, 2011 5:14 pm |
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| Tofu Pup |
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Joined: Fri Jan 07, 2011 1:18 am Posts: 9
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Soak and float shampoo bar by Lush helps on my scalp, but it makes your hair smell kinda like a tar pit. I have patches on my knees that I put olive oil on which helps with the dryness.
As Fezza said be careful with the steroid creams, maybe only use it if it gets really nasty. It can make your skin thin and fragile, and may have other side effects with long term use.
Your skin is an awesome organ even if it tries to eat itself! I have surgery and injury scars on my legs, and keratosis pilaris everywhere and granuloma annulare on my ankles and psoriasis on my scalp and knees and have only recently stopped giving a shiitake about covering up all my 'flaws'. It's hot here and I will dress comfortably. None of my rashes are contagious and the body perfection police can peas off. /end rant
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appifanie
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Post subject: Re: psoriasis support thread! Posted: Fri Jan 07, 2011 5:31 pm |
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| Bought 20lbs of vegan protein powder |
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Joined: Tue Oct 19, 2010 6:37 pm Posts: 6389 Location: NC for now
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this book was recommended to me by a friend (i have eczema and there's 1 chapter on eczema) - http://www.amazon.com/Healing-Psoriasis ... 429&sr=8-1
_________________ "T-shirts are not allowed in heaven, Karyn. They don't do casual Fridays." - Amandabear
"It's because I'm judging them. Harshly. Judgey McJudgerson." - mel c
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