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 Post subject: Re: How is your body betraying you?
PostPosted: Mon Feb 29, 2016 11:44 am 
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2 toes have chilblains and are SO FORKING itchy I could cut them off :(

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 Post subject: Re: How is your body betraying you?
PostPosted: Mon Feb 29, 2016 1:25 pm 
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Top of the food chain & doesn't need to prove it
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ugh i broke one of my toes a few years ago and it never really healed 100% (the circulation is definitely affected) and i got what i suspect is a chilblain, as well, after biking during a cold weather warning. it sucks because whatever i wear, my toes get a bit chilly (but not enough to seriously bother me) on the bike, especially if i'm out for more than 45min.


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 Post subject: Re: How is your body betraying you?
PostPosted: Thu Mar 03, 2016 11:10 am 
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Wow my wrist is just killing me. It has been getting better, or so I thought. Usually I wake up in the morning with it stiff and then it gets better as I move around but not today. Luckily I'm going to the doctor soon.

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 Post subject: Re: How is your body betraying you?
PostPosted: Fri Mar 04, 2016 11:35 am 
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My husband put KT tape on my wrist for me, it helps a lot. I highly suggest looking into it for anyone who is having muscular/joint issues.

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 Post subject: Re: How is your body betraying you?
PostPosted: Thu Mar 17, 2016 4:25 pm 
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Naked Under Apron
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Ever since yesterday everything has tasted somewhat of soap. It's very annoying, I keep trying to eat flavourful things to take it away but nope. Not pregnant, thanks Google (Google says it's either that or some woo fluoride is nasty thing).

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 Post subject: Re: How is your body betraying you?
PostPosted: Thu Mar 17, 2016 8:13 pm 
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I recently was formally "diagnosed" for my toe calluses, and apparently they are a result of my bone structure...something that all who have seen my feet have always marveled at. Yes, those toes are in fact intended for a different foot. So I have to cope with incredibly painful calluses for the rest of my life by wearing silicon sheets around the joints.
For weeks my right knee was bothering me. I trained my quads up with alternates and weights so I could keep running. I seemed successful...I even completed a 13.1 run and felt great, albeit tired, the next week. Knee pain was gone! But then just as I completed my level one karate instruction, I managed to really kill my hamstrings doing basic stretches for warm up. 0.0 Oooh wellll.


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 Post subject: Re: How is your body betraying you?
PostPosted: Fri Mar 18, 2016 4:13 am 
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vixki, is it a cilantro thing? or a pine nut thing? I know people whose mouths get all forked up taste-wise from those two foods.

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 Post subject: Re: How is your body betraying you?
PostPosted: Fri Mar 18, 2016 4:20 am 
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booberthefraggle wrote:
vixki, is it a cilantro thing? or a pine nut thing? I know people whose mouths get all forked up taste-wise from those two foods.


As far as I know I haven't had either in the last couple weeks, I've been busy with uni and haven't eaten anything that I've not made myself all week. Doesn't taste so bad this morning though so fingers crossed it's gone.

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 Post subject: Re: How is your body betraying you?
PostPosted: Tue Mar 22, 2016 1:05 am 
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first flare on new meds which means that every single part of my whole idiot body is in pain (as it often is) but since new meds are even more immunosuppressive than previous ones, I am paranoid that I'm sick so I get to keep compulsively checking my temperature! because on these meds: if I have a fever over 100 I have to go to the ER!

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 Post subject: Re: How is your body betraying you?
PostPosted: Tue Mar 22, 2016 8:40 am 
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Second day of having a fever over 102 (39 c). I wish I didn't wake up from my own coughing. I took codeine drops but I don't think they helped and I'm not sure if I want to take more. On top of everything I feel really nauseous. I tried to eat a tiny bit of dinner last night and had to throw up. Now I'm taking baby sips of water, maybe I'll get up to 2 litres without throwing up again.

I kind of wish this fever just made me sleep the whole time, instead I'm changing between reading children's books (still really hard to focus on them) and just lying there with my eyes closed or staring into the room.

Also, I had to cancel my therapy session for tomorrow and I have to pay 50 euros (or 100?) because it was too late.

And everything hurts, obviously. My neck, my back, my knees, my ears, my Eyes, my head, my teeth...

I hope it goes away on its own, the holidays are coming up and the doctors office will be closed.

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 Post subject: Re: How is your body betraying you?
PostPosted: Wed Mar 23, 2016 8:35 pm 
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My fibro flare is causing me to not cope very well with day to day life, or vice versa.

The pain is quite bad and I'm so, so tired. Plus I'm having all the crazy annoying nerve symptoms, like phantom sensations and problems with dexterity.

I just need to sleep for a few days straight but I feel like that's never going to happen

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 Post subject: Re: How is your body betraying you?
PostPosted: Thu Mar 24, 2016 7:52 am 
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I'm starting to feel pretty certain I'm developing insulin resistance. The major red flag (among others) for me is all this dark, soft but thick skin around my neck. It's all over the back of my neck and corners of my mouth, too and I have never had so much skin discoloration in my life. Been hesitating on getting tested because I kinda don't want to know. But I think it's time to stop forking around and get my body straightened out (as best as possible given other chronic illnesses, of course).

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 Post subject: Re: How is your body betraying you?
PostPosted: Fri Mar 25, 2016 11:29 am 
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I was sick two weeks ago - nothing that serious, just a cold with some fever and coughing. It cleared up in a couple of days, and I went on with my life, just with a bit of a lingering cough and some extra snot. Last week, D got sick with what appears to have been a different cold. Now, I'm sick again! I was going to race my bike tomorrow, but I think I'll have to give it a miss. I don't mind getting sick too much, but twice in three weeks sucks!

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 Post subject: Re: How is your body betraying you?
PostPosted: Fri Mar 25, 2016 11:40 am 
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So many good thoughts to everyone suffering!

I have this ongoing problem with my knees (after a skiing accident in 2002 and reconstructive surgery it's just still troubling me) and now my feet have this ongoing numbness and cold, so I was freaked out and worried. I went to the orthopedic surgeon, because I was worried I might be ready for the total knee replacement my last surgeon thought was the next step for me, but he didn't feel like it was that bad yet. He wants to rule out that it might be core weakness or an injury to my back. We're doing scans to find out.

I just want to be able to walk without pain, and I'm pretty scared that they'll find something not good.

I am so frustrated with medicine in the US - it's like being sick is a full time job - schedule appointments, get referrals, make sure you have enough coverage for whatever you want, find childcare, find doctor reviews, do your own research, get ready to ask good questions because you just have the doctor for a few minutes. Try and find out exactly which hoops insurance wants you to jump through and hope they don't change and result in you getting a denial of coverage. And that's before you even have anything serious to worry about.

I know there are many people on this board who have chronic health issues, and I can't imagine how you get through this process, which is so daunting, all the time. We really do still need healthcare reform, even post ACA

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 Post subject: Re: How is your body betraying you?
PostPosted: Fri Mar 25, 2016 9:42 pm 
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I was well over due to have my b12 and iron checked and with how terrible I have been feeling I was really starting to think that a deficiency was causing my fibro flare.

This was a scary thought - I don't want to be a stereotypical vegan! Sickly and weak and not taking my supplements properly or eating well. My doc has been supportive of my being vegan but if it came up with other people I would have to admit to being deficient.

The office called. My b12 and iron levels are aces. Just another test in a long line of tests that comes back great.

I nearly cried because that means I am legitimately doing this poorly from an illness that many people still think doesn't exist. I am doing this poorly and I'm not going to be able to fix it with pills or shots. I actually don't know if I can keep going with schedule I've been doing at work and I don't know what that means for me there long term.

I'm sore and tired and sad and it is feeling like my constant state of being lately.

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 Post subject: Re: How is your body betraying you?
PostPosted: Sun Mar 27, 2016 12:00 pm 
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Gentle hugs to everyone who's suffering right now.

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 Post subject: Re: How is your body betraying you?
PostPosted: Mon Mar 28, 2016 5:50 pm 
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Moon wrote:
I was well over due to have my b12 and iron checked and with how terrible I have been feeling I was really starting to think that a deficiency was causing my fibro flare.

This was a scary thought - I don't want to be a stereotypical vegan! Sickly and weak and not taking my supplements properly or eating well. My doc has been supportive of my being vegan but if it came up with other people I would have to admit to being deficient.

The office called. My b12 and iron levels are aces. Just another test in a long line of tests that comes back great.

I nearly cried because that means I am legitimately doing this poorly from an illness that many people still think doesn't exist. I am doing this poorly and I'm not going to be able to fix it with pills or shots. I actually don't know if I can keep going with schedule I've been doing at work and I don't know what that means for me there long term.

I'm sore and tired and sad and it is feeling like my constant state of being lately.


I am in a very similar circumstance. I actually cried this morning because it feels like there isn't one person in my life that can retain the information that I am in pain all over my body all day, every day. It's not even like I talk about it that much. More in direct response to the questions of why I can't do this or that. Ummmm....because I'm in terrible pain (still).


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 Post subject: Re: How is your body betraying you?
PostPosted: Mon Mar 28, 2016 11:06 pm 
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~random numbness hour~

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 Post subject: Re: How is your body betraying you?
PostPosted: Wed Mar 30, 2016 4:50 pm 
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I definitely think there's something up with me. I'm always exhausted, tired, I get sick all of the time, my body is always in pain. I almost never go out anywhere anymore, I can't really exercise, I can't walk for too long, I can't stand for too long, I can't sit sometimes, I can't lay down sometimes. It's making me so depressed because I can never do anything anymore.

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 Post subject: Re: How is your body betraying you?
PostPosted: Wed Mar 30, 2016 4:59 pm 
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I am so sorry Mr. Shankly.

It definitely sounds like your work situation is pretty trying, so that on top of feeling tired, sick and in pain, must be really hard.

Sending you many good thoughts.

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 Post subject: Re: How is your body betraying you?
PostPosted: Wed Apr 13, 2016 5:49 am 
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Dropped half a point in each eye compared to my current glasses (09-14). Last September (09-15) I had dropped a quarter point (in one eye? both? I don't remember). People keep on telling me this will stop. I don't know if it's that I'm still so new to glasses (only 3 years) or what, but I wish it would slow the fork down and stabilize already.

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 Post subject: Re: How is your body betraying you?
PostPosted: Mon Apr 25, 2016 6:29 am 
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blah blah bald spot.


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 Post subject: Re: How is your body betraying you?
PostPosted: Mon Apr 25, 2016 6:41 am 
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I've had those paperweight! You know what worked for me, although I had flakes as well, was coconut oil. When I was a teenager, I had it for years and recently freaked when one showed up but decided to try coconut oil and the hair came back quickly.

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 Post subject: Re: How is your body betraying you?
PostPosted: Thu Apr 28, 2016 6:06 am 
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So I'm basically here to complain about WITHDRAWING FROM PREDNISOLONE WHAT THE HELL.

I've had millions of courses over the last 3 years and had a 3/4 week course with a taper I stopped a week ago. I'm feeling sooooo bad, joint pain, muscle pain, fatigue and I'm wheezing again. I hate this.

Sympathy and commiserations to everyone who's feeling bad.


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 Post subject: Re: How is your body betraying you?
PostPosted: Thu May 12, 2016 11:29 am 
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Had my laparoscopy yesterday. No idea how extensive the surgery was. I know I was out cold for at least an hour and a half which is longer than I expected for a diagnostic procedure but nobody told me any results as the doc went home right after haha. I have to wait for a letter telling me every happened which is annoying as I have no idea how much was done and how I should feel.

Anyway my stomach hurts where the scars are a lot and it hurts to pee and my throat hurts ow.

And I ventured outside but everyone is mowing the lawn on this lovely day and I started sneezing and wow that hurt more than I could have imagined!

Also I think I am catching my husband's cold...great.

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