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 Post subject: High ANA Levels: What does it mean?
PostPosted: Tue Oct 26, 2010 5:15 pm 
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My doctor just left me a message that my ANA levels are high and she wants me to go to a rheumatologist. She told me a few months ago when she first brought this up that these antibodies are not the same thing as my Hashimoto's thyroiditis. Should I be worried about lupus?

In other news, my Vitamin D levels are low again. Because I'm horrible about taking my VegLife. Man, I'm feeling kind of embarrassed.

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 Post subject: Re: High ANA Levels: What does it mean?
PostPosted: Wed Oct 27, 2010 8:50 am 
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Chip Strong
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My ANA was at the low end of high last year when we were doing some testing. I think it was that and the sed rate (the measure of inflammation) that led us to further testing for rheumatoid arthritis. When I went to the rheumatologist, he ordered an anti-ccp test which will determine if you have RA or not. (I do.)
I think the ANA on its own is not necessarily a diagnosis for Lupus, I think I remember from my research that there are other tests they will do.
So many of the auto-immune disorders overlap and diagnosis can be difficult. I wouldn't panic about Lupus at this point (I know that is easier said than done!) and the rheumatologist should be able to give you a better idea of what, if anything, is going on.

And people with auto-immune disorders are chronically low in vitamin D, so don't feel too bad! (I have also not been taking my D lately!)

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 Post subject: Re: High ANA Levels: What does it mean?
PostPosted: Wed Oct 27, 2010 12:12 pm 
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Saggy Butt

Joined: Wed Oct 20, 2010 1:53 pm
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oh! this is me exactly.

I have my second follow up next week. My rheumy thinks that my elevated ANA levels are because of my raynaud's (fingers turning colors in the cold). They can classify the type of ANAs you have which will basically indicate what further testing you need. It's just a screening though, not a diagnostic test. My pcp's office was freaking out at me over my levels and then the rheumy was not nearly as concerned. Hopefully it will work out well for you too.

Also, I can't keep my vitamin D levels good for anything. I am back on a longer course of the rx supplement, because I was taking 1000 units/day and still had absurdly low levels. It happens. Don't feel bad about it, but do ask what they suggest.

Good luck. Feel free to PM me if there's anything I can do to be helpful. I was super stressed, but it seems now not to have been warranted.


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 Post subject: Re: High ANA Levels: What does it mean?
PostPosted: Thu Oct 28, 2010 1:44 am 
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I use this site a lot when trying to figure out lab reports... it lists every blood test known and when you click on the test you are wondering about...about half down the screen are several tabs that explain it even more.

http://www.labtestsonline.org/map/aindex.html


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 Post subject: Re: High ANA Levels: What does it mean?
PostPosted: Fri Oct 29, 2010 7:20 pm 
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Thanks everyone for your thoughts and suggestions. It made me feel a lot better.

I just watched the documentary Foodmatters and am wondering whether it wouldn't be a good idea to seek out a nutritionist to see if that would help all of these seemingly chronic issues I am having.

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 Post subject: Re: High ANA Levels: What does it mean?
PostPosted: Sun Nov 07, 2010 5:38 pm 
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Tofu Pup

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Daria wrote:
Should I be worried about lupus?



It could be a false reading, or any number of auto-immune disorders. As someone who has lived with lupus for more than 30 years, and suffered some of the worst aspects of it, I can tell you its not as bad as they make it out to be on 'House'. Research auto-immune disorders, if that makes you feel better and armed for facing whatever diagnosis may come (I hate not knowing so research always calms me, but can scare others worse). Otherwise breathe and get on with your life. If it helps, being vegan has resulted in me no longer taking any drugs and when my kidneys failed (I'm in remission from this aspect for the bulk of the last 4 years), the specialists told me my clean vegan diet and active lifestyle was more effective than anything they could do for me.

If you do get a diagnosis of RA or SLE, don't hesitate to pepper me with questions. Any diagnosis is scary in the early going and the sooner you learn to cope the better.


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 Post subject: Re: High ANA Levels: What does it mean?
PostPosted: Wed Jan 04, 2012 8:47 pm 
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i'm jumping in this old thread because i've had sudden achey joints since christmas, and after doing tests, the rheumatologist thinks i may have lupus. my ANA is high, and she just had me get more blood drawn to check more specifically. so, hi! i may have lupus.

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 Post subject: Re: High ANA Levels: What does it mean?
PostPosted: Wed Feb 08, 2012 1:47 pm 
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Tofu Pup

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I also have high ANA — I've had constant, generalized, low-grade itching for almost two years. I've been to more doctors than I knew existed — dermatologist, allergist, hematologist, rheumatologist, endocrinologist — and the ANA was the only thing they could find. The rheumatologist says it's probably an autoimmune disorder that hasn't manifested yet. Joy! That's part of why I decided to go vegan. I read that plant-based diets can slow the development of these things. Has anyone ever been in a similar situation?


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 Post subject: Re: High ANA Levels: What does it mean?
PostPosted: Tue Feb 10, 2015 4:47 pm 
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Vegan Vegan Vegan Vegan Vegan
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hey all! I'm resurrecting this thread because I just had an ANA test and it came back SUPER high, my GP thinks it's either RA or SLE based on my other symptoms and I couldn't find a rheumatologist on my insurance plan that could see me before MARCH 17TH AND I AM A LITTLE FREAKED OUT.
how's everyone doing?

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 Post subject: Re: High ANA Levels: What does it mean?
PostPosted: Tue Feb 10, 2015 5:52 pm 
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Chip Strong
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Sorry boober:( I have RA which was asymptomatic for a while after I posted in this thread so long ago. It took a change in rheumotologists and some experimentation, but now I'm on a great drug (seriously a miracle drug). If you want to ask me any questions or whatever, I'd be happy to help if I can!

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 Post subject: Re: High ANA Levels: What does it mean?
PostPosted: Wed Feb 11, 2015 8:59 am 
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WELFARIST!
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Rheumatologist on March 17th is really, really good! I had to wait 4 months for my first appointment with mine. Good luck!

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