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 Post subject: Re: Irritable Bowel Syndrome - IBS
PostPosted: Mon Jun 23, 2014 10:57 am 
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I found following the FODMAP diet brilliant for my IBS. I was even able to re-introduce some wheat but ate a granny smith apple a few weeks ago and it's only now my IBS is settling down again. It's still not great and I would kill to be able to eat some veg other than broccoli & carrot. I'm so bored with my diet lately and getting faaaaaaar too many calories with oven chips. I'm fine for protein, it's getting good carbs & a selection of fruit & veg that I'm struggling with at this point. I have to avoid migraine trigger foods, so it's even more complicated, bah.


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 Post subject: Re: Irritable Bowel Syndrome - IBS
PostPosted: Mon Jun 23, 2014 11:07 am 
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The FODMAP diet did nothing for me (I didn't notice a single change in symptoms) even though I followed it rigourously.

Can you eat greens like spinach/lettuce? Courgettes/Zucchini? Tomatoes? Those are pretty much what I had lots of when I was on the diet. I don't know about migraine trigger foods so perhaps they fall into that.

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 Post subject: Re: Irritable Bowel Syndrome - IBS
PostPosted: Mon Jun 23, 2014 11:22 am 
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I'm eating salads and tomatoes when I have the energy to throw them together. I've had a lot of stress/fatigue lately so miss being able to throw healthy meals together easily. I think I need to meal plan and try to set aside times for food prep (I hate courgettes).


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 Post subject: Re: Irritable Bowel Syndrome - IBS
PostPosted: Tue Jun 24, 2014 10:44 am 
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My stomach is a little better this week, I still have no idea what set me off but I'm trying to stay away from eating too many raw veggies, which kind of sucks when you're trying to eat healthier. I had a green smoothie this morning and felt a little queasy for maybe 45 minutes after but it wasn't anything that bothered me too much. I think the worst part is just not knowing what causes it, the evil stomach demons can strike at any time!

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 Post subject: Re: Irritable Bowel Syndrome - IBS
PostPosted: Thu Jun 26, 2014 2:13 am 
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Since starting my new job a month ago I've been absolutely miserable every day. I guess it's the stress? Anyway, I just figured.out all my symptoms add up to ibs and that I've had it for years. So I guess I'm going to work my way through this thread. I'm going to try a fennel supplement that got good reviews on amazon. Hope it helps because I'm not willing to change my diet quite yet!

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 Post subject: Re: Irritable Bowel Syndrome - IBS
PostPosted: Wed Apr 22, 2015 9:10 am 
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After 6 months of diarrhea and bloating every day I think I will have to do something, I am so fed up. I am tired all the time and most of the time would prefer eating nothing because at least that doesnt hurt so much.

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 Post subject: Re: Irritable Bowel Syndrome - IBS
PostPosted: Wed Apr 22, 2015 7:38 pm 
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I was labeled with IBS from 2000 to 2004. I had every test under the sun because I had terrible painful cramps, weeks of constipation followed by explosive diarrhea that exhausted me. Sometimes I had such terrible pain it felt like my intestines were being squeezed. It was unbearable and I fainted a few times from the pain. I also had low grade fevers as measured at many a doctor visit. To me these symptoms were not indicative of IBS but nothing could be found. I had a sigmoidoscopy, barium enema, numerous blood tests, pelvic ultrasound, CT scan...At one time I was told I was a hypochondriac and given a referal to a psychologist. Yeah. I was crying in frustration that day for missing a day a month of work (the day I had the explosive diarrhea each month). Then my periods and the time around ovulation became unbearably painful. I had the same symptoms intensified.

One day a coworker told me she had the same symptoms at one time and hers was endometriosis. I had never heard of that. I did some research and it fit me to a T! I made an appointment with a gynecologist who wanted to do a laparoscopy to look in there. He said it was the only way to truly diagnose endometriosis. At first I was too afraid so we tried hormone treatments, but they made me sicker. Finally I had the lap surgery. I had extensive endometriosis all over my bladder, colon, ligaments surrounding uterus, on uterus, around the housing of one ovary and on the other. The rise and fall of hormones throughout the month was causing the squeezing pain and cramps and the bowel issues because the endometriosis tissue implanted outside my uterus was responding to my hormones. Which explains the four years of hell I endured.

I tried Lupron shots and was very sick from them. I went to numerous gynecologists and all said get a hysterectomy, though I really didn't want one. I just wanted the endo removed but they said it was too extensive. I ended up having a total hysterectomy at the age of 33, childless, and woke up with both ovaries gone. Surgical menopause was extremely traumatic and debilitating for me. I still had to have another surgery one year later even with all my reproductive parts, including cervix, gone, because of scar tissue, leftover endometriosis not removed from my bladder, and adhesions. FINALLY the abdominal pain left me.

But only after I cleaned up my diet and then got dairy completely out and went fully vegan in February 2011 did my digestion improve dramatically. In four years I maybe have been constipated once or twice lol. Rarely any diarrhea. No abdominal pain. I truly wish I would have gone vegan before consenting to the hysterectomy. I didn't even know what it was then. In fact I wish someone would have mentioned endometriosis as a possibility for my digestive issues way back in the beginning instead of getting the runaround and being told to eat bland food. I lived on rice, applesauce, and eggs back then. Ugh.

I also now suffer with severe osteoporosis due to losing my ovaries so young (among other reasons but that is a huge one), even with hrt and calcium/d supplements. I developed an eating disorder that was triggered by the trauma and grief I went through with the hysterectomy/surgical menopause and hormone imbalance that I battled for eight years (anorexia nervosa).

I always share my story with people who suffer with IBS. Not that I think everyone who has IBS has endometriosis. Reproductive and hormone issues are an avenue that doctors do not consider nearly enough but they can profoundly affect digestion/bowels. Especially endometriosis as symptoms can be vague and may not seem to be related to periods. Thyroid problems can also cause impaired intestinal mobility and so on. Just thought I would throw this out there in case someone is desperately trying to find answers.

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 Post subject: Re: Irritable Bowel Syndrome - IBS
PostPosted: Thu Apr 23, 2015 1:10 am 
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Robin, wow, your story sounds like a hard time :(

I've wondered about endometriosis myself as I'm pretty sure my aunt has it, and I definitely get debilitating symptoms around my period. I have it mostly managed with the Nuvaring (can't take pills because they make me physically sick) but I'm going to have to come off it I think because I've been getting migraines from it.

Unfortunately my gyno was less than helpful and told me that at my age, endometriosis was extremely unlikely and he doesn't do laps in women under thirty.

Does endometriosis cause low grade fevers? I've noticed that I almost always have a low grade fever particularly when I'm flaring up.

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 Post subject: Re: Irritable Bowel Syndrome - IBS
PostPosted: Thu Apr 23, 2015 1:47 am 
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Well, for me it's not unlikely that it's linked to hormones as I have Hashimoto's and an underactive thyroid but mostly when it was bad I used to be constipated, not feel sick and have diarrhea. I also haven't had my period in almost half a year so I doubt it's that.

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 Post subject: Re: Irritable Bowel Syndrome - IBS
PostPosted: Thu Apr 23, 2015 4:18 am 
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vixki wrote:
Robin, wow, your story sounds like a hard time :(

I've wondered about endometriosis myself as I'm pretty sure my aunt has it, and I definitely get debilitating symptoms around my period. I have it mostly managed with the Nuvaring (can't take pills because they make me physically sick) but I'm going to have to come off it I think because I've been getting migraines from it.

Unfortunately my gyno was less than helpful and told me that at my age, endometriosis was extremely unlikely and he doesn't do laps in women under thirty.

Does endometriosis cause low grade fevers? I've noticed that I almost always have a low grade fever particularly when I'm flaring up.


It can cause low grade fevers, since it is intricately involved with the immune system, and the body is fighting what it perceives as foreign matter (the endo lesions implanted in abnormal places in the pelvic region and beyond). I found this article that explains it somewhat:
http://www.endometriosisinstitute.com/e ... elvic-pain

I'm surprised your doctor doesn't do laps in women under thirty. are you sure you mean he doesn't do hysterectomies for women under thirty? A laparoscopy, though it is still surgery, is fairly simple and not as invasive or risky as an open abdominal surgery. It is done as an outpatient procedure nowadays. Not that I am pushing surgery in any way. For me it validated that my pain was not imagined or exagerated. I just KNEW it was more than a sensitive system.

Also, you don't have to have periods to still have endometriosis. There have been documented cases of prepubescent girls and women in menopause with it, though I suppose this is not common. Strangely, having been treated for hypothyroidism for 26 years (from the time I was 16 to the present), there were many times when I was way hypo that I actually had episodes of diarrhea, and when I am on too much med and TSH is suppressed I can get bound up, though that hasn't happened in years (I have my TSH religiously monitored because too much thyroid med can worsen my existing osteoporosis).

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 Post subject: Re: Irritable Bowel Syndrome - IBS
PostPosted: Thu Apr 23, 2015 4:45 am 
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Thank you for the link. He definitely said that he wouldn't do a lap in women under thirty, unless there was "obvious reason" which apparently excruciating periods isn't. I had an ultrasound that came back clear, he said that "proved" I don't have anything wrong with me which I know isn't necessarily true.

This was also the same guy who told me that my aunt (my dads sister) having endometriosis has no relevance, because she is on my dads side, and you can't inherit menstrual disorders from your father. Which again is rubbish but I was too shy to say so.

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 Post subject: Re: Irritable Bowel Syndrome - IBS
PostPosted: Tue Jul 07, 2015 9:49 pm 
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I promise to catch up on all these posts soon. I have been away for quite a while because my IBS was doing amazing, from 2013 to a few months ago. I rarely got sick. I had a social life again. All was great. Well, now I am sick. Violently sick. It started off as a once-a-month thing, then to a once-a-week thing, and now every other day. I am guilty of going vegetarian for a while, and I need the magic powers of a vegan diet back into my life, to heal more than my gut.

So, that begs the question: What do I eat for breakfast tomorrow? I am going to the grocery store here in 30 minutes and I have nothing "safe" in my house right now. Help!


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 Post subject: Re: Irritable Bowel Syndrome - IBS
PostPosted: Thu Aug 27, 2015 9:13 am 
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Hi, I'm hoping someone on this thread can help me. I'm looking for an organization or popular blogger to work with to advertise adoption of IBD cats and dogs. I don't want to go to crohns and colitis because they test on animals but that's the only organization that I know. Any suggestions would be greatly appreciated!


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 Post subject: Re: Irritable Bowel Syndrome - IBS
PostPosted: Mon Sep 07, 2015 6:06 am 
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I have been thinking recently that I probably have IBS. I can eat things like wheat gluten and other grains when I eat pescetarian (almost) without difficulty, but trying to go vegan again really illuminated an issue... I ended up losing a tremendous amount of weight and needing emergency care.
I'm not sure what to think. I'm in line to see a new doctor next month, but I went back to eating fish and eggs...trying to shy away from the dairy because lactose makes me crash and gives me a bubbly gut anyway. :/ But it was weird. I would become possessed with the feeling that I need to consume entire bags or boxes of vegan protein and it would just flow right through me like I'm not actually digesting any of it. Tofu is okay, so is hummus, but everything else upsets my stomach and seems to be missing me nutritionally...
I'm still learning how to cook real food, and on a stringent budget... so advice is much appreciated.


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 Post subject: Re: Irritable Bowel Syndrome - IBS
PostPosted: Mon Sep 07, 2015 7:03 am 
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Alyx, have you tried any sort of elimination diet? The Fodmap one mentioned above is very restrictive but good for highlighting problems.

Nutritionally, you will be ok for a short period of time without getting "everything" - so if you eat super bland boring safe foods for a while and occasionally try foods that might make you sick, while you may lack a bit on nutrients, you will be ok if you only do it for a few weeks.

When you eat vegan are you eating lots more fruits and veggies? Have you tracked your fibre intake? Sometimes eating too much fibre is problematic for ibs. It could be that you can handle the fibre in grains etc when you don't have so much extra, but when you add in the extra veggies etc you overload?

Definitely look at the Fodmap diet. It's really helpful in finding out if you have trigger foods.

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 Post subject: Re: Irritable Bowel Syndrome - IBS
PostPosted: Mon Sep 07, 2015 3:41 pm 
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I have seen a few nutritionists about portions to help me make sure that I'm not just eating too many vegetables, but it looks like I'm having trouble with beans and grains too. I am almost certain it's just a matter of the fiber being too much for me...even brown rice is an issue sometimes, depending on what I pair it with. If I add lentils for instance, having more than a couple of tablespoons might set me off if I'm having something made of seitan/oats/beans/etc as a "meat". Then certain vegetables, lke anything "cabbagey" or starchy like broccoli,peas, etc (with the exception of some squash and potatoes) will also set me off... leafy greens seem okay, and for whatever reason hummus and tofu are perfectly alright. I'm at a loss...


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 Post subject: Re: Irritable Bowel Syndrome - IBS
PostPosted: Mon Sep 28, 2015 6:01 am 
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Belated <3 for Robin! My neighbor is about 36 and had a hysterectomy a few years ago and she was trying to talk me into getting one the other day, says it was great and she's so glad she did it, and I'm just so confused by that because I knew there was no way it was that easy.

I still don't actually know what's wrong w/ me, but I woke up with my stomach gurgling up a storm, so I'm just sitting around and commiserating. <3

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 Post subject: Re: Irritable Bowel Syndrome - IBS
PostPosted: Tue Oct 06, 2015 4:36 am 
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kalelicious wrote:
Belated <3 for Robin! My neighbor is about 36 and had a hysterectomy a few years ago and she was trying to talk me into getting one the other day, says it was great and she's so glad she did it, and I'm just so confused by that because I knew there was no way it was that easy.

I still don't actually know what's wrong w/ me, but I woke up with my stomach gurgling up a storm, so I'm just sitting around and commiserating. <3


A lot of women seem to be happy with having a hysterectomy. I think maybe it has to do with whether the ovaries are left intact or not, and whether the ovaries fail after a hysterectomy or not (sometimes ovaries can fail when the uterus is removed but not always). You just never know though. I have met a lot of women who have struggled with health issues since having one too. I just talked to another woman online who also had a total hysterectomy and lost both ovaries twenty years ago and she too has severe osteoporosis despite taking calcium/D, exercise etc. Both of us are on osteoporosis meds now, which are not all that pleasant but neither is fracturing a bone which I have also experienced. I truly think every possible other avenue should be explored first before having organs removed. And the minimum possible should be removed if necessary. I think for me, the Lupron should have been a fair warning on what surgical menopause was going to be like since it temporarily shuts down the ovaries and puts one in a menopausal state. I had a terrible time with it.

I hope you figure out what is causing your stomach woes! I feel for you!

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 Post subject: Re: Irritable Bowel Syndrome - IBS
PostPosted: Sat Oct 24, 2015 11:02 am 
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I'm pretty excited to have returned from my last doctor's appointment having been recommended probiotics, but not specifically dairy-based ones. I've tried making my own soy-milk yogurt, and alternating between non-vegan and vegan plain cultured yogurt and things have been much better for me within the past few weeks when I do try to eat vegan sometimes. I'm hoping it turns out that I just needed to acclimate my gut a little more to real food. I'd been living in hotels and dormitories off of 3,000$ a year in the time leading up to my health episode, and in all honesty I've probably never been too healthy of an eater. I'm just wondering if anyone else with GI issues has had luck with vegan probiotics?? How do you guys usually tolerate nutritional yeast as well? I personally love it, but cannot tell if I should be trying to eat it or not. As sad as that sounds.


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 Post subject: Re: Irritable Bowel Syndrome - IBS
PostPosted: Sun Aug 14, 2016 2:18 pm 
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Has anyone here tried soluble fibre supplements for predominantly d- IBS? I'm a bit at my wits end with (TMI) having to use lots of loo roll when I go (/TMI) and have seen recs for psyllium etc but I'm worried it might make me have to go even more.

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 Post subject: Re: Irritable Bowel Syndrome - IBS
PostPosted: Tue Aug 23, 2016 5:58 pm 
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vixki wrote:
Has anyone here tried soluble fibre supplements for predominantly d- IBS? I'm a bit at my wits end with (TMI) having to use lots of loo roll when I go (/TMI) and have seen recs for psyllium etc but I'm worried it might make me have to go even more.


Increasing fibre does work for some people with d-IBS but for me it was another irritant that caused more spasms and probs. Is there a time that you have a few days close to home (or a loo) to try some additional fibre (just a little bit at a time - slowly increase) and see how it works for you?

I've had d-IBS for about 10 years. It started after I had a wicked intestinal bug that I picked up while travelling. I'v'e seen medical specialists, had a lot of testing and done the 'tracking logs' for symptoms and strategies.

Overall what seems to work best for me is a daily cup of rosehip/hibiscus tea to slow down my insides and get rid of the gastric spasms. When that doesn't work, I try a month of probiotics ( B. infantis).

The experimental approach to treating IBS is frustrating, but it can help narrow down what strategies work best in individual situations. Do you have access to doctors who are doing research on treating IBS -D - eg. a medical school ? IBS research and treatment is a specialty with new findings and reports coming out all the time.


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 Post subject: Re: Irritable Bowel Syndrome - IBS
PostPosted: Wed Aug 24, 2016 8:28 am 
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Thanks Padraigin. I got some psyllium husk powder, it has a reccomended dose of 2g and I'm starting at a quarter that. I mean it seems small because I am sure I get many g of fibre a day from vegetables and whats half a gram going to do? But we'll see.

I am wary of taking anything to slow down my insides because i have gastroparesis too (which is my stomach being delayed) and things that slow me down make that flare up. I can't take imodium without it causing lots of pain.

My doctors either declare "it's not IBS, since FODMAP didn't work" or they say "eh, we don't know what it is, it must be IBS, you're fine go home".

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 Post subject: Re: Irritable Bowel Syndrome - IBS
PostPosted: Wed Aug 24, 2016 5:32 pm 
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vixki wrote:
My doctors either declare "it's not IBS, since FODMAP didn't work" or they say "eh, we don't know what it is, it must be IBS, you're fine go home".


Wow. This response from doctors is not the diagnosis and treatment you need. Do you feel ok trying different IBS management options on your own or would you prefer more medical support ?

There is a medical research group studying IBS out of the University of Birmingham. Their initial research looked more at quality of life issues, but they are now researching IBS treatment options and outcomes. Dr. Lesley Roberts appears to be one of the lead researchers. This group would likely know which doctors in your region specialize in treating IBS and are proactively working to build more knowledge of treatment options. Could one of your doctors reach out and try to get you additional specialized medical care ?

http://www.birmingham.ac.uk/research/ac ... index.aspx


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