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The Type 1 Diabetes Rumpus Room
http://forum.theppk.com/viewtopic.php?f=25&t=3340
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Author:  FootFace [ Fri Mar 11, 2016 5:03 pm ]
Post subject:  Re: The Type 1 Diabetes Rumpus Room

My bG is all over the place, with no pump to blame it on. Feels like my highs are getting higher and my lows are getting lower.

(I'm going to be doing a continuous monitoring thing for a week, in a couple weeks. Maybe that'll be informative?)

Author:  mollyjade [ Fri Mar 11, 2016 5:25 pm ]
Post subject:  Re: The Type 1 Diabetes Rumpus Room

I've done the continuous monitoring before, and it does help. Though it can be hard to fine tune basal with MDI.

Author:  FootFace [ Mon Mar 21, 2016 12:14 pm ]
Post subject:  Re: The Type 1 Diabetes Rumpus Room

I have the CGM thing in now. Not sure how I feel about this.

Author:  FootFace [ Sat Mar 26, 2016 1:30 pm ]
Post subject:  Re: The Type 1 Diabetes Rumpus Room

Two more days to go. I don't love it.

Author:  mollyjade [ Sun Mar 27, 2016 4:56 pm ]
Post subject:  Re: The Type 1 Diabetes Rumpus Room

That's a long time! I only ever wore the doctor's office ones for three days.

Author:  FootFace [ Mon Mar 28, 2016 11:03 am ]
Post subject:  Re: The Type 1 Diabetes Rumpus Room

Getting it out any minute now! In the waiting room.

Author:  FootFace [ Mon Mar 28, 2016 12:24 pm ]
Post subject:  Re: The Type 1 Diabetes Rumpus Room

Their computers were acting up, so they couldn't download the info. I have to come back next week.

What we know so far: my ratios are all screwy. Because diabetes is stupid and I hate it.

Author:  mollyjade [ Mon Mar 28, 2016 5:34 pm ]
Post subject:  Re: The Type 1 Diabetes Rumpus Room

Sounds about right.

Author:  FootFace [ Thu Mar 31, 2016 2:04 pm ]
Post subject:  Re: The Type 1 Diabetes Rumpus Room

I went in to talk to the nurse yesterday, and we looked at all the graphs of my CGM data. More insulin adjusting, more carb counting.

Author:  mollyjade [ Thu Mar 31, 2016 6:03 pm ]
Post subject:  Re: The Type 1 Diabetes Rumpus Room

Is it something you would do again?

Author:  FootFace [ Fri Apr 01, 2016 8:20 am ]
Post subject:  Re: The Type 1 Diabetes Rumpus Room

I think so. To see what's really going on after we make all these adjustments.

Author:  mollyjade [ Tue Jun 07, 2016 9:42 pm ]
Post subject:  Re: The Type 1 Diabetes Rumpus Room

I went to a new endo today. It turns out the reason I couldn't get an appointment with my old endo ("Call back in June. She doesn't have any appointments available the next two months.") is because she's closing her practice. Apparently she's going to send a letter. Eventually. In which she may or may not recommend another doctor.

So I'm seeing the only endo in my (pop ~1 million) city that my insurance considers in-network. I'm a bit nervous about the new doctor. She's very brusque (not a good fit for me). And the first visit consisted of an EKG (even though I had one six months ago), a body fat percentage test, a basal metabolic rate test, and a huge list of blood tests. The staff couldn't figure out how to download the data from my pump. They did take out the battery, though, which meant I had to restart everything.

I have a second appointment next week to go over everything. With all those tests, I'm worried it's just going to be a long lecture on weight.

Author:  FootFace [ Thu Jun 09, 2016 11:58 am ]
Post subject:  Re: The Type 1 Diabetes Rumpus Room

Good luck.

I have an endo appointment tomorrow, where we will no doubt discuss how my previous insulin dosages no longer do the trick. As usual. Why can't this stuff just settle down?

Author:  mollyjade [ Wed Jun 15, 2016 11:10 pm ]
Post subject:  Re: The Type 1 Diabetes Rumpus Room

It went fairly well. Though more tests! Some kind of electrical machine to test my nerves in my hands and feet. Thyroid and carotid artery ultrasounds. Their glucometer was way off 315 when my meter measured 243 (an hour after breakfast).

She's sending me to a dietitian, which I don't think will be helpful for me. I don't have a specific food issue I need help with, and I've had more than enough education on carb counting and healthy diets over the past 30 years.

And then back to see the PA in six weeks. I sure hope my insurance covers all of this.

Author:  FootFace [ Thu Jun 16, 2016 9:57 am ]
Post subject:  Re: The Type 1 Diabetes Rumpus Room

Kee-ripes.

You did the nerve induction test thing? The electromyogram? I still remember when I did that.

Author:  mollyjade [ Thu Jun 16, 2016 10:07 pm ]
Post subject:  Re: The Type 1 Diabetes Rumpus Room

No, it was this machine. You put your hands and bare feet on these metal pads and it reads electrical activity (I think).

http://www.impeto-medical.com/about-ezs ... -the-ezsc/

The doctor is very into new technology and testing it seems.

Author:  mollyjade [ Fri Jun 24, 2016 9:19 pm ]
Post subject:  Re: The Type 1 Diabetes Rumpus Room

As expected, the dietitian visit was a waste of time.

"You already know to do, X, right? And Y?"

The only advice she had was to cut down to 45 g carb for lunch and dinner, and that's just not going to happen on a regular basis. I didn't during my pregnancy, and it really limited what and where I could eat. It's unrealistic.

Author:  FootFace [ Fri Jun 24, 2016 10:06 pm ]
Post subject:  Re: The Type 1 Diabetes Rumpus Room

I agree. 45g? Nope.

Author:  FootFace [ Fri Jun 30, 2017 4:40 pm ]
Post subject:  Re: The Type 1 Diabetes Rumpus Room

Today's A1C: 7.2!

It's the lowest since 2011!

Author:  ijustdiedinside [ Sat Jul 01, 2017 12:00 pm ]
Post subject:  Re: The Type 1 Diabetes Rumpus Room

heyyy that's awesome!

Author:  FootFace [ Mon Jul 10, 2017 9:13 pm ]
Post subject:  Re: The Type 1 Diabetes Rumpus Room

So... turns out my insurance doesn't cover the $300+-per-vial insulin I've been using forever. (Humalog. I use Lantus, too, but my insurance covers that.)

I never realized this, and no one bothered to tell me. In a way, it doesn't matter, because I will meet my deductible regardless, no problem.

So after I learned about this, I mycharted my doc, and found out my insurance requires me to go on Novolog instead (unless or until I "fail" on it). I don't know what that means. How do I fail on this or that brand of insulin?

ALSO: Novolog costs $430+ per vial! But the joke's on them because they'll be footing the bill for more expensive insulin.

Author:  FootFace [ Wed Jul 19, 2017 2:23 pm ]
Post subject:  Re: The Type 1 Diabetes Rumpus Room

I was wrong about the $430+ price tag. That was the cost of 5 vials, after insurance. (Five? Insurance has never let me get that much of anything before.)

Author:  mollyjade [ Fri Jul 28, 2017 5:32 pm ]
Post subject:  Re: The Type 1 Diabetes Rumpus Room

I didn't notice much difference when I switched from lantus to levemir (same brand as novolog, I believe). Hopefully it's not a big deal. Also, insurance insulin preferences suck.

I just got the fancy new minimed hybrid pump. Though it sold better than they expected, and I won't have the continuous glucose monitor for a bit. So it's currently not much different than my animas pump. I don't think I've ever been this excited about new diabetes technology. (Though lantus is 5000% percent better than nph. I was just too young to appreciate it.) This is just a step away from an artificial pancreas.

https://www.medtronicdiabetes.com/produ ... ump-system

Author:  FootFace [ Fri Jul 28, 2017 6:56 pm ]
Post subject:  Re: The Type 1 Diabetes Rumpus Room

Does this mean all of your pump issues have been resolved? (Weren't you having a lot of trouble when you started with it?)

Author:  ijustdiedinside [ Fri Jul 28, 2017 8:10 pm ]
Post subject:  Re: The Type 1 Diabetes Rumpus Room

wow. that looks really cool. automatically administers insulin based on glucose levels. that looks really cool! report back with how it all works when you get continuous glucose monitoring. All of my work with diabetes really revolves around balancing quality of life and food and blood sugar levels without really worrying about the long term effects of high blood sugar given that most people are in their 80s or 90s. So i'm always interested in what young people are doing. And also we mostly have type 2, of course.

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