Thank you, Tofulish and paperweight.
I am so sorry that you're going through health challenges, and don't even feel safe to ask for support, without having to justify why it's not your fault for not just eating a steak (which would probably be hard on your kidneys right?).
Indeed. And, in fact, there seems to be evidence that eating plant protein vs. animal protein can help slow the decline of kidney function.
I don't know if there is anything you can do to explain that it's not veganism's fault, so I would probably withhold the information about my veganism if I could, which isn't always feasible, or just beg off and not give too many details, if you don't want uninvited input.
I tend not to give out a lot of details about either my diet OR my health to new people in my life. The ones I'm worried about are the ones who I've been friends with for years, who know I'm vegan, but who think of my veganism as "a quirk". They know less about my health issues because I haven't had reason to talk about them much before. But now they are having an effect on my life, and I just hope these friends understand that I'm not allowing myself to become fatigued because of my (in their eyes) "quirky lifestyle".
I saw someone post about her back pain from fibro and RA and it was immediately followed by "Well why don't you do yoga?" And she said "Thanks for the advice, but in my case, sadly yoga aggravates my pain" and was told "Oh you haven't found the right yoga instructor yet, keep trying!"
Because it's hard to have to acknowledge that some health stuff is shitty and terrible and happens to even the best and most careful people, because that means that it could happen to you.
I'm lucky, because at least I can point to a very specific and "healthy/acceptable" reason for my pain (ski accident), but even there, I know several people who had the same surgery and went back to running marathons and skiing, which is not something I can do. I walk wrong and fork my back up.
I've got an autosomal dominant disease, which means it was a genetic crapshoot. My (omni most of her life, now pescatarian mother) has it, so I had a 50% change of getting it. I was born with it. It has nothing to do with lifestyle. It turns out that a vegan lifestyle may actually confer some advantages, but no matter what I do "right", it's a progressive, degenerative disease, and at my age, I'm actually lucky
that all I have to deal with are pain and fatigue (and having to pee a lot). Lots of people my age are already on dialysis or are waiting for a transplant. But it's a disease that very few people know anything about, and because I look
fine, people don't get that I am not 100% healthy.
Sending everyone dealing with fatigue and chronic issues many good thoughts. I am wrecked today. I haven't gotten out of bed, and it was like a huge effort to make lunch. My husband stayed home all morning and watched our daughter and now she is watching all the videos. And I really hope that this is something that I can manage, because being this tired is so exhausting.
I'm so sorry you're having to deal with pain and fatigue too. Yep, this shiitake is exhausting.
I hear you. I have people straight up tell me that they think my health problems are caused by veganism.
I find it so frustrating because, among other things, if string cheese or whatever were some magical edible gene therapy that would fix my messed up collagen, then I would suck it up and eat a daily dose of string cheese that was massively over priced and only available through a special pharmacy that doesn't take my insurance.
Like, we're not all sitting here enduring significant pain, fatigue, and myriad other complications and just refusing to entertain some obvious solution that is out there for our serious illnesses. And I resent the implication that someone who hadn't ever even heard of my condition until I told them about it thinks they know what makes it better or worse. Nope. Wrong. Goodbye.
I know, right? People do this with my partner as well, who has Crohn's. They tell him to eat lots of fruit with insoluble fiber, which would basically tear his poor inflamed guts to pieces. The idea is that he'll just have to suck up the pain and agony for a while but that it would cure him in the end. Um.... no?
I'm so sorry that you have to deal with this. It really sucks to have this kind of worry about being open--whether because of veganism or just general worry about judging friends--on top of the fatigue.
Thanks. Maybe I'm underestimating my friends. I mean, they tease me about my veganism, and they don't get it themselves, but they have always been kind about making sure there's something for me to eat, and are good sports about trying vegan food. My one friend made sure the caterers at her wedding had REAL food for me, and not some sad salad. (It was really good!) So maybe my concerns are coming more from myself and not wanting to give the impression that I, a vegan, have any
health problems, especially "vague" symptoms like fatigue that people could so easily attribute to diet, even though I
know it's a hugely common problem with this disease, no matter what your diet.