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 Post subject: Re: PCOS!
PostPosted: Tue Apr 23, 2013 1:02 pm 
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Joyfulgirl, that sounds awful, I'm not an expert but could you get some tranexamic acid, it says to take it on first day but I'm sure I have heard of people taking it after a while of bleeding, but I can't be sure and also don't know if suitable or what it's made of.

It sounds crazy to just wait though, that's a long time and a lot of blood, you poor thing.


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 Post subject: Re: PCOS!
PostPosted: Tue Apr 23, 2013 1:54 pm 
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Semen Strong
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joyfulgirl wrote:
Okay, I've officially had enough. I have had my period since March 21. That's OVER THIRTY DAYS. and it's still super heavy. Like overflowing my diva cup and staining my pants at 8:30 am kind of heavy. It hasn't been like this in years. I went to the gyno last week and she basically told me to wait it out and go to an endocrinologist and then we can see about starting me on metformin. But I'm just about at the end of my tolerance of this shiitake.
Has anyone ever had these super long awful periods? or do you have any advice on how I can cope with life when all I want to do is cry and eat chocolate? can I at least get some hugs?


(((((((HUGS))))))))))) A 30 day period would drive me batty and I'd worry about iron stores etc. Can you call your OB and ask about it? Also, not sure why she can't just Rx you metformin - I think its a pretty standard treatment for PCOS. Also, can you start drinking Vitex (chasteberry) tea? That stuff works wonders for me.

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 Post subject: Re: PCOS!
PostPosted: Tue Apr 23, 2013 2:29 pm 
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Keepin' It Seal
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Thanks you guys! It's a new doctor that I've been seeing, and I never got an "official" diagnosis.
Longish story: This all went down 2 years ago when I had just gotten accepted for medicaid and before I was eligible for benefits through work, so I had no OB yet and just went to a primary care dr. After seeing my FSH/LH levels, she ordered an ultrasound which showed multiple cysts. She said it looked pretty clear that I had it, but that I should consult with an OB. My insurance at the time covered only one OB within 25 miles, but I hated it there. The NP treated me like an idiot and walked into the room without knocking in those few minutes following her instructions to get undressed. I was completely horrified and too nervous to go through the process of finding someone else until now.
So now I guess this new dr wants to do all the tests over again to see for herself? I don't know why she didn't just ask me to fax over the old files. or why I need to see an endocrinologist. But for now, I'll look for Vitex. Is it available at Whole Foods?
ETA: I searched here and googled it and it looks like it's only available online. Also, after seeing all your (and some others') previous posts about it, I'm about to have that shiitake sent next day delivery.


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 Post subject: Re: PCOS!
PostPosted: Tue Apr 23, 2013 2:49 pm 
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Keepin' It Seal
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also, does the brand matter? I saw that you linked to Fertilitea in one previous post, but Chaste Tree Berries Tea by Celebration Herbals is way cheaper. I will pay anything to stop this madness in my pants.


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 Post subject: Re: PCOS!
PostPosted: Tue Apr 23, 2013 2:50 pm 
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I can't help at all but I can definitely give you hugs, joyful. That sucks!!

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 Post subject: Re: PCOS!
PostPosted: Fri Apr 26, 2013 8:17 am 
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Not NOT A Furry
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Big hugs, joyful. I hope the madness ends soon.

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 Post subject: Re: PCOS!
PostPosted: Fri Apr 26, 2013 8:26 am 
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okay, I ordered the Fertilitea (can't wait to confuse my housemates when read the package about boosting fertility) but it has been a little lighter these past few days, like a normal lightish flow. I hope this is the beginning of the end.


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 Post subject: Re: PCOS!
PostPosted: Fri Apr 26, 2013 8:45 am 
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Semen Strong
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I am SO sorry I didn't check this earlier! I have some left I could have given you! I am so sorry. Let me know if you need anything or any other help, and you can try my amazing acupuncturist if you want - seriously she is magic and a former nurse, and just one of the gentlest and kindest people ever. Even just call her and ask (917) 957-0001 She works with a ton of Chinese herbs too.

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 Post subject: Re: PCOS!
PostPosted: Sun Jul 28, 2013 3:48 pm 
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Let's write some new life into this topic..

I'm new to the ppk forum, but I used to check it regularly for information or just random stuff.

When I was looking for information about PCOS + being vegan + ... I thought I might find something on here and it was a lucky guess apparently :-)! It's really hard to find decent information about being vegan and having PCOS (and not wanting kids)...

So I recently found out that I have PCOS. But I'll start at the beginning. I had my periods quite irregular before I was 17 and then I didn't have them for months. My gynaecologist gave me some pills to induce my period again, which worked, and then I started with bc. I took bc from age 17 until I was 24. And I stopped taking it because I wanted to live a healthier life without meds and because I thought it wasn't really necessary for me to take it anymore (my gyn was okay with me stopping bc + I would've stopped taking it anyway). So I quit at the end of January 2012 and since then I had my period twice (september and november). I did ask my gyn about it, but she said I had nothing to worry about (body adjusting, ...). And in May 2013 I thought it would be a good idea to go earlier to the gyn for a check-up about this, because since november nothing had happened in the period department of my body. Oh, and I go to the gyn every year for a check-up.
She checked my ovaries and saw they were bigger than they're supposed to and some other things... She assumed it was PCOS and took some blood to check the hormone levels.
I wasn't too happy about it, because she didn't give me a lot of information about pcos. She just said I had to take some kind of pill to induce my period again and then I should take bc again (but an adjusted kind for pcos). But I'm reluctant to take bc again and I told her that (because I do feel soooooo much better without it!). I really had to ask about the symptoms and the consequences on the short & long term, 'cause as I said she didn't give me a lot of info. She did say about preganancy that it will be difficult and that the most common treatment is bc for now. And she also said that if I wouldn't take bc I still should take the period inducing pills every couple of months (for 14 days) to clean everything out (to lower the risk for cervical cancer). So I looked it up online.. wasn't too happy with most of the things I found :-/.
After a week she called back with the results form the tests. It's D-E-F-I-N-I-T-E-L-Y PCOS :-(.
I can't remember the exact names of the male hormone things she tested. But one of them was 98 (and it should be around 48) and the other one was 1.24 (and that one should be 0.5). She was surprised that it was that high! And so was I off course!
Since then I'm struggling to decide what to do. 'Cause I'm afraid to leave it just like this for the consequences... and of the huge amount of male hormones in my not so male body...
The thing is that I don't want children (I'm 25 now and it's something I've been saying for 10 years now. My opinion about this might change in the future or it might not...). And most of the information online is about women trying to get pregnant with pcos. I'm in desperate need of info about women who don't want children and who are vegan and I'm also up for more natural things to try (if they help/might help!)....

Anyone who can help? Or who knows more about it/recognize themselves a bit?

Anyway thanks for reading this though!


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 Post subject: Re: PCOS!
PostPosted: Sun Jul 28, 2013 4:43 pm 
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There is really no magic to whether you want to have kids or not dictating your treatment other than if you wanted to have kids, a medical doctor wouldn't prescribe you birth control pills. If there are any 'natural' remedies that regulate periods, then that would provide similar benefits to birth control pills and other treatments. I've been using birth control pills for 10 years or so and I've had a few misses (bc pills that screwed up with my hormones - I was crying at the drop of a hat).

Exercise helps, eating a diet that controls your blood sugar helps, things that could help diabetics could help as well. I remember my life before bc pills so I'm way too scared to get on them until menopause hits sometime in the next 10 years.

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 Post subject: Re: PCOS!
PostPosted: Mon Oct 07, 2013 6:21 pm 
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Today I got a call from my doctor saying my ultrasound results were consistent with PCOS. I'm going in to have blood drawn tomorrow, but I'm kind of scared about this whole thing. I know it isn't a formal diagnosis, but from what I've read, it sounds like me. I'm feeling some weird grief things for some reason. Not sure where I'm at here. Hopefully I'll know more after I see my doctor next week.

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 Post subject: Re: PCOS!
PostPosted: Tue Oct 22, 2013 7:04 pm 
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Definitely PCOS. I have to do a two hour glucose test now, and they want me to meet with a geneticist because of family history stuff. I'm not sure what I'm supposed to do at this point...

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 Post subject: Re: PCOS!
PostPosted: Fri Nov 15, 2013 11:02 am 
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Now I'm at the doctors office doing a 2 hour glucose test...the drink wasn't too awful, just kind of like flat orange soda. The three blood draws are a little insane though...fasting, sugary beverage, and then taking my blood...boy I feel great.

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 Post subject: Re: PCOS!
PostPosted: Mon Jan 12, 2015 4:34 pm 
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I had a doctors appointment today and came home to look up this "Polycystic Ovary Syndrome," I was diagnosed with. The pharmacist, based on my prescription, assumed I was diabetic. He started talking about buying a tester and strips--- That's when I very first started to get upset about the diagnosis. I came home to do research and decided to check the PPK.

I nearly cried from happiness when found this thread. (Though the last post was over a year ago)

He gave me a prescription for Metformin with the warning that it was going to give me diarrhea. (yay) I initially went to this doctor because it's been impossible for me to lose weight for the past year or so. I've been working my butt off and logging my food and I actually gained weight. He would not go so far as to say that this is going to help me lose weight, but I am still getting my hopes up, because I don't have any other option.

Anyway, I start taking it tonight with dinner.


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 Post subject: Re: PCOS!
PostPosted: Mon Jan 12, 2015 5:26 pm 
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Metformin actually got me constipated. I think they assume if you are fat, you are eating a fatty diet which may be the link with diarrhea.

My best advice would be to look into glycemic index/load. Basically, concentrate on foods that help keep blood sugar stable although insulin response isn't dependent on 1 thing. You can do it, it can be a struggle but exercise is one of the best things for PCOS (and I keep telling myself that).

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 Post subject: Re: PCOS!
PostPosted: Tue Jan 13, 2015 8:10 am 
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BAD PASS
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You're right, it did get me constipated.

Thanks. I'll look into the glycemic index stuff. Yarg.


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 Post subject: Re: PCOS!
PostPosted: Mon Feb 02, 2015 12:26 pm 
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weird question: do any of you pop positive on ANA screenings? can PCOS throw that off?

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 Post subject: Re: PCOS!
PostPosted: Thu Feb 05, 2015 7:05 pm 
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Has it on Blue Vinyl
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I just joined the PCOS diagnosis ranks. My endo ran pretty much every lab on earth and I was positive for almost all of them, which she said was unusual. On top of that I went from normal iron two years ago to severe iron deficiency anemia because of my frequent heavy cycles and spotting in between, so now I'm on a megadose of iron as well as metformin. The first day on the meds was hell, but I'm on day 3 now and starting to feel human again.

One thing I'm worried about as a vegan is I've read multiple places that metformin can interfere with B12 absorption, and I was wondering if anyone had experienced that. I do daily liquid B12 as habit, but I'm not sure if my standard dose will still be enough.

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 Post subject: Re: PCOS!
PostPosted: Fri Feb 06, 2015 10:48 am 
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Did they have you start out with 1 pill a day and then gradually increase? I felt almost no side effects, other than the initial constipation. Now I'm on two in the morning and two at night and I don't have any side effects.

I have a follow up in April, so I don't know how well it's working, but I *have* finally been able to start losing weight.

I wasn't told anything about it interfering with my B12, though.


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 Post subject: Re: PCOS!
PostPosted: Fri Feb 06, 2015 7:55 pm 
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Has it on Blue Vinyl
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She started me on 2 a day of the extended release, and if I handle that she wants me to add 2 more in 2 weeks. My stomach is a little tetchy, but I just started the megadose iron too, so that's not surprising.

My endo didn't say anything about the B12 either, I think initially I saw it either on the wiki for metformin, or looking up possible side effects.

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 Post subject: Re: PCOS!
PostPosted: Sun Feb 08, 2015 1:01 am 
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Hollie,
I am currently taking Metformin and started in November. Good news is it hasn't given me diarrhea. Bad news is, I haven't lost any weight lol. How many mg are you on? I am only taking one pill a day... but I got this prescription from a regular doctor. I want to see an endo.

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 Post subject: Re: PCOS!
PostPosted: Sun Feb 08, 2015 1:16 am 
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Semen Strong
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For what it's worth, I have had my PCOS under control for a year now using Femmenessence Maca Health. http://www.vitaminshoppe.com/p/natural- ... -capsules/

I had PCOS from my early 30s and couldn't ever lose weight. When I wanted to get pregnant at 35, I went on Metformin and did lose a bit of weight, but eventually felt like I got more benefit from using Vitex, but then after my daughter was born (I weighed 164lbs 6weeks after giving birth and yelled at my midwife that their scale couldn't be right), I just couldn't get below 148lbs (at 4'11") and went back to the usual irregular periods etc. And then my health counselor suggested Femmenessence and within a month or two my cycle was a clockwork 28 days. And now I'm back at a "normal" BMI (127lbs) and I feel so much better.

If anyone is interested, I can highly recommend it.

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 Post subject: Re: PCOS!
PostPosted: Sun Feb 08, 2015 10:21 pm 
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Tofulish, I am very interested... Is this something you found on your own or is it from a naturopath? That is crazy to me that your cycle ended up that regular. I just had my first period since starting metformin so if I don't get one within a month of this one, I will be potentially interested in other options.

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 Post subject: Re: PCOS!
PostPosted: Sun Feb 08, 2015 11:02 pm 
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Semen Strong
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Its over the counter and one of the herbal products you can get at Whole Foods! I started working with a health counselor, because no matter what I did, my period was so irregular after I had Leela and I couldn't get down from 148 lbs (at 4'11). She advised me to take Femmenessence and apply lemongrass oil across my pelvis and my period reappeared and is regular and I've lost around 20lbs at last count. I stopped taking it a few months in and everything has stayed regular. Like, I have a cycle you can set your calendar to. Which has never ever been the case in my life and certainly not since I was diagnosed with PCOS.

I was surprised at how well it worked and profoundly grateful.

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 Post subject: Re: PCOS!
PostPosted: Mon Feb 09, 2015 10:20 am 
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BAD PASS
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Bridgettebakes wrote:
Hollie,
I am currently taking Metformin and started in November. Good news is it hasn't given me diarrhea. Bad news is, I haven't lost any weight lol. How many mg are you on? I am only taking one pill a day... but I got this prescription from a regular doctor. I want to see an endo.


I'm not sure how many mg it is -- I just have my little "SMTWTFS" daily pill box with me, not the prescription bottle. I'll try to look when I get home.

I have a decent amount of weight to lose, and it's why I went to the endo in the first place. I was working my butt off and eating super strictly healthy and still gaining. I thought I might have had a thyroid issue, but was diagnosed with PCOS instead.

On Feb 12th it will be one month since I went on Metformin, and I've lost 9 pounds so far, doing basically the same things I was doing before. Hoping to make it an even 10 or more by the month mark.


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