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 Post subject: loss of motor functions
PostPosted: Sat May 26, 2012 10:48 pm 
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List of crepe I've done in the last week: (yes I've gone to the doctor, they can't find anything "wrong" also all this has been going on for a very long time, and comes and goes in spurts)
I trip, walk into stuff, or hit my limbs on things every single day more than once a day. Also I drop stuff all the time.
Last Friday I fell up the stairs, broke two glass bottles full of liquid, dropped my water bottle and tripped on my sopping wet and cut sock. Went to urgent care, nothing was "wrong" other than a piece of glass in my foot.
Saturday I fell for no reason and banged my knee and twisted my ankle. My foot just slipped out from under me.
Monday I got dizzy, couldn't breathe and passed out. Went to the ER, everything was normal. Blood work, heart tests, cat scan.
Tuesday I slid down the stairs, no injury this time.
Tripped over a pencil on my classroom floor (how the heck?) and managed to make my hip and back hurt.
Last night, ran into my sliding closet door (meaning it does not sick out) and somehow dislocated my pinky toe. Not broken. X-ray taken, tapped up and told to put lidocaine on it for pain
This morning I slammed my hand in my car door. just bruised.

This is what concerns me: this morning I distinctly remember shutting the door and knowing my hand should have come off the top of the door. But it didn't move. I feel like I'm losing control of my motor skills.

Thoughts? The doctors just keep testing my blood, seeing it's normal (except a bit anemic and D deficient. Not a lot. It's gotten better since it was dangerously low) and sending me on my way. I don't know what to ask for or say to them. I feel like I'm falling apart. This is just the list of injuries for the last 8 days. Seriously the ER thinks someone is beating me or I'm purposely hurting myself. I'm at a loss. I need ideas.

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 Post subject: Re: loss of motor functions
PostPosted: Sat May 26, 2012 11:16 pm 
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I see you mentioned getting a CAT scan, but where was the scan of? I'm not trying to scare you, but if your doctor hasn't ruled out the possibility of a brain tumor, I'd get that checked. My stepdad went through something similar, and it turns out he had a tumor. (he's ok now, fyi!)

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 Post subject: Re: loss of motor functions
PostPosted: Sun May 27, 2012 12:52 am 
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I went through a period like this when I was very stressed and depressed.

I hope you can figure something out soon. Not much is worse than unexplained medical weirdness.

I'd ask my primary doctor for a neurology referral.

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 Post subject: Re: loss of motor functions
PostPosted: Sun May 27, 2012 8:41 am 
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lavawitch wrote:
I'd ask my primary doctor for a neurology referral.


Ditto This! The ER isn't set up to give these kinds of diagnosis. You need to get in to see a Nerve Specialist.

Move Slowly and stay safe! Are you driving? ((((BIG HUGS))))


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 Post subject: Re: loss of motor functions
PostPosted: Sun May 27, 2012 9:20 am 
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You need new doctors, ones that aren't ER doctors or your regular one. If they aren't giving you the answers you need, you have to keep going until you find one who will.

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 Post subject: Re: loss of motor functions
PostPosted: Sun May 27, 2012 9:25 am 
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Yeah, you definitely need to have more comprehensive medical exams and docs who wont send you on your way when they can't figure it out. i know it can be hard to find a doctor, but talk to a friend and find out who their primary care doctor is and go from there.

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 Post subject: Re: loss of motor functions
PostPosted: Sun May 27, 2012 9:42 am 
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I have an appointment with a neurologist in June and a heart doctor for a stress test next week (one of the ER claims was angina which wouldn't show in an EKG or blood tests)
CAT scan was done on my head.
I just don't know what to ask or how to approach. From all angles it appears I'm crazy and clumsy but I know something is wrong. It's been wrong and for a long time no one listens to me and it's getting worse and worse. I can say for certain that it's worse when I'm stressed out. Last year in August at the start of the school year I had a severe allergic reaction when someone fed me dairy without me knowing. In that same week (the week school started) I almost cut the tip of my finger off with a butter knife (another time I know my finger wouldn't move, but I thought it moved) and rolled my ankle and fell face first on the pavement cutting my lip and breaking my glasses.
But even when I'm not stressed, I misjudge distances, I "forget" to move my hand, leg etc. I trip, I fall, I run into stuff.

I guess I need to know how to go about not sounding crazy. I know I probably do here with all my issues. I feel like my entire adult life I've just been falling apart at the seams.

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 Post subject: Re: loss of motor functions
PostPosted: Sun May 27, 2012 9:43 am 
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thisheregiraffe wrote:
I see you mentioned getting a CAT scan, but where was the scan of? I'm not trying to scare you, but if your doctor hasn't ruled out the possibility of a brain tumor, I'd get that checked. My stepdad went through something similar, and it turns out he had a tumor. (he's ok now, fyi!)


This. Yes it might be jumping to worst case scenario, but something pressing into your brainstem can do that to you. Unfortunately I know because my brother had a brain tumor and he often looked like he was drunk when it hit his brain stem. Have you been having headaches too?

I think some of those symptoms are associate with MS too, but I don't know if that can present so suddenly.

Hopefully it isn't something serious, but I would definitely ask for a neuro consult. If it is something serious, you don't want to let it go.


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 Post subject: Re: loss of motor functions
PostPosted: Sun May 27, 2012 9:44 am 
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you don't sound crazy to me! just tell them all this stuff! if you're trying to move your hand and it's not moving that doesn't sound like you're clumsy, that sounds like a problem. just say what you've said on here. it sounds totally legit.

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 Post subject: Re: loss of motor functions
PostPosted: Sun May 27, 2012 10:04 am 
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ijustdiedinside wrote:
you don't sound crazy to me! just tell them all this stuff! if you're trying to move your hand and it's not moving that doesn't sound like you're clumsy, that sounds like a problem. just say what you've said on here. it sounds totally legit.


This exactly. You don't sound crazy at all. Drs have heard everything, so they aren't fazed by much. Sometimes you just have to hunt around before you find a Dr who is willing to go in depth to figure out what is really wrong and not dismiss you. Once you find someone who truly wants to help you, it's totally worth all the annoying ones you dealt with along the way.

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 Post subject: Re: loss of motor functions
PostPosted: Sun May 27, 2012 10:32 am 
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Big hugs to you from Idaho, assilembob!

I'm glad you have an appointment with a neurologist soon. I'm not sure what all the blood tests you've had were looking for,
but things to rule out might be MS, Parkinson's, and other neurologic diseases. Transient Ischemic Attacks and Strokes would
have been identified at this point with what you've had done.

The neurologist might send you to physical therapy/rehab for balance training. There are all kinds of reasons people's
proprioceptors (the mechanisms that tells us where our bodies are in space) might not be working correctly.

The pool might be a good place for you to practice balance on your own right now, if you are comfortable around water. In water up to your chest or so, you could try standing on one foot, hopping, keeping your balance with your eyes closed for 30 seconds, then a minute, (on one leg or both legs), walking with one foot directly in front of the other, exercising in the water, etc. You could walk back and forth across the pool- forward, backwards, sideways. Stand, and do leg or arm exercises. If you do fall, the water catches you.

I hope you find some answers soon.

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 Post subject: Re: loss of motor functions
PostPosted: Sun May 27, 2012 10:35 am 
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Big hugs. My mind immediately screamed a neurologist referral as well.


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 Post subject: Re: loss of motor functions
PostPosted: Sun May 27, 2012 10:43 am 
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Just a personal aside, which doesn't account for all your symptoms by any means, but could (maybe? possibly?) be part of your issue....

I don't have the best body awareness to begin with, and when I get stressed or hurried I run into everything.
I am the exact opposite of graceful! Everyone is born with different levels of proprioception- maybe stress is throwing yours
askew? Which doesn't explain all your signs and symptoms, I know. I hope you neuro doc can give you some concrete answers.

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 Post subject: Re: loss of motor functions
PostPosted: Sun May 27, 2012 12:10 pm 
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that sounds really frustrating! i just want to +1 everyones recommendation to go to a neurologist. my best friend was diagnosed with myastenia gravis 6 months back, after 6 months of her motor functions falling apart - dropping things, not being able to unlock doors, hold small items, she was really tired and had about a million other symtoms, which just got worse and worse.

i can't even explain the relief it was for all of us when she finally got in touch with the right doctor who found out what was wrong - it took 5 months of her getting told nothing was wrong, until desperation and her illness getting worse and worse, for someone in the medical system to actually take her seriously. it did take both her, me and her mother to be extremely stubborn and keep telling the people at the hospital that something was DEFINITELY wrong, before she got taken seriously.


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 Post subject: Re: loss of motor functions
PostPosted: Sun May 27, 2012 3:28 pm 
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With all the bloodwork you had, was a B-12 level done? Are you *taking* any B-12?

There was a similar discussion on the McDougall forums not that long ago and it turned out the person had low B-12 levels and once she got an injection then started taking daily supplements her symptoms *slowly* went away.


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 Post subject: Re: loss of motor functions
PostPosted: Sun May 27, 2012 10:16 pm 
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I have a neurological disorder (a form of MD). My motor skills are "off". It is good you will see a neurologist - it's often something nerve conduction related meeting with motor skills - it can at least rule out things.
Also - could be nutritional deficiencies. As mentioned above - was the blood work inclusive of all vitamins/minerals?
B12 is one. Less common (most food will get you enough of these): Any of the Bs, Vitamin E
Good luck with your appointment - that they find what it is (and it's only nutrition related - easiest to fix)/


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 Post subject: Re: loss of motor functions
PostPosted: Mon May 28, 2012 5:30 pm 
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Yeah all vitamin and minerals are checked bi-monthly since a year ago march due to a dangerous Anemia stemming from a month long menstrual cycle. I was low in b12 but not much and I get monthly shots and take a sublingual supplement. Also take liquid iron, vitamin D, another B complex, a multi-vitamin, probiotics and a thyroid supplement in addition to my synthroid. I feel like I take more pills than a 90 year old and I'm 31!

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 Post subject: Re: loss of motor functions
PostPosted: Mon May 28, 2012 8:44 pm 
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Oh my! Well I hope the trip to a neurologist resolves all this.


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 Post subject: Re: loss of motor functions
PostPosted: Tue May 29, 2012 9:46 am 
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I agree to just relay the info to the docs the same way you are telling us. Keep pressing them and don't stop seeking help and answers until you are satisfied and on the right track.

Someone in my family had motor skill issues last year. One day she got into a car accident and then when she got to work she started dropping things and losing her balance. Luckily she works in a hospital as a nurse. So when the rest of the nurses started seeing her act this way they called a doc. They took her in for a CAT scan and saw that she did have a tumor in her brain. She went in for emergency surgery to have it removed and has since started cancer treatment for it. Scary, but there is a reason the body gives us warning signs and we have to listen to them!

Sounds like your CAT scan was normal though which is a huge relief! Hugs! And keep us posted.

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 Post subject: Re: loss of motor functions
PostPosted: Tue May 29, 2012 11:59 am 
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The wrong doctors have this amazing ability to make you feel crazy. I hate them so much. I know it's been said and it does really suck but you have to keep going to doctors until you find one that you are comfortable with and who will listen to you. Otherwise they are just going to keep giving you the run around.

Good luck, I hope they get it figured out soon, that sounds so scary.

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 Post subject: Re: loss of motor functions
PostPosted: Tue May 29, 2012 12:10 pm 
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I just reread the part that you said this has been happening for awhile. I would check with the neurologist about MS as well. That often develops gradually over time.


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 Post subject: Re: loss of motor functions
PostPosted: Sat Jun 02, 2012 10:10 am 
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Next week can't come soon enough. My hip and outsides of my leg, arm and hand on my left side keep going numb. Yeah crassholes at the ER, my primary care doctor, urgent care doctors...SOMETHING is wrong. Limbs just don't go numb. Not even gonna waste my time at urgent care or ER today.

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 Post subject: Re: loss of motor functions
PostPosted: Sat Jun 02, 2012 11:26 am 
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assilembob wrote:
Next week can't come soon enough. My hip and outsides of my leg, arm and hand on my left side keep going numb. Yeah crassholes at the ER, my primary care doctor, urgent care doctors...SOMETHING is wrong. Limbs just don't go numb. Not even gonna waste my time at urgent care or ER today.



I know you're fed up with the ER docs, but if you're having numbness in your limbs like that you might want to consider going back in. If your left arm is going numb, that could be heart related. Not trying to freak you out but it could be really serious.


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 Post subject: Re: loss of motor functions
PostPosted: Sat Jun 02, 2012 11:29 am 
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How is your stress levels lately? When I first developed panic disorder, I experienced a great deal of numbness in my limbs, loss of attention span, pins and needles in my skin...turns out it was from the panic attacks I was having, and I wasn't breathing properly so I was essentially depriving myself of oxygen. Fingers crossed for you.

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 Post subject: Re: loss of motor functions
PostPosted: Sat Jun 02, 2012 11:34 am 
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I'm working on my stress levels. I am forcing myself to breathe. I get panic and anxiety attacks a lot but it's begining to taper off.

They did tons of heart tests. There's not a thing wrong with my heart. I get numbness every so often just this has been solidly numb on the outsides since last night when I took some of my paperwork and boxes from my classroom up the stairs at home. The outsides of my feet go numb occasionally, the outsides of my hands occasionally go numb. My hip does it sometimes too. It's sickening to say "it's normal" for me...and I know it's not but apparently the doctors didn't care or thought I was imagining it. Some of this stems from an accident in 2008 which left me with a bulging disc and damage to my SI nerve in my hip.

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