| Register  | FAQ  | Search | Login 
It is currently Wed Jul 30, 2014 11:43 pm

All times are UTC - 6 hours [ DST ]




Post new topic Reply to topic  [ 60 posts ]  Go to page 1, 2, 3  Next
Author Message
 Post subject: Questions About Hypothyroidism
PostPosted: Sun May 19, 2013 12:24 am 
Offline
Fair trade, organic mistletoe
User avatar

Joined: Wed Oct 20, 2010 12:52 am
Posts: 3507
Location: Toronto
Hi Folks,

I know there are a few hypos on the board. I've just been tested and it looks like my TSH is in the low-normal range (0.95mU/L,
0.27-4.2 is considered normal). T3 and T4 tests weren't done because TSH is normal. However, I have been reading that TSH is not a reliable indicator of hypo (or hyper) because it is actually measuring pituitary function and could have a normal reading while someone is still hypo. What I'm reading makes a lot of sense, but seems to fly in the face of the status quo and I am having a hard time figuring out what I should be trusting, what my next steps should be, etc. I've been reading http://www.stopthethyroidmadness.com/.

Any feedback, experiences, tips?

_________________
"I'd rather have dried catshit! I'd rather have astroturf! I'd rather have an igloo!"~Isa

"But really, anyone willing to dangle their baby in front of a crocodile is A-OK in my book."~SSD


Top
 Profile  
 
 Post subject: Re: Questions About Hypothyroidism
PostPosted: Sun May 19, 2013 7:42 am 
Offline
Has it on Blue Vinyl
User avatar

Joined: Wed Jan 05, 2011 7:44 pm
Posts: 2144
Why are you worried about it? Are you having symptoms? That said, with hypothyroid your TSH will be higher than normal, not lower. That is the hormone that stimulates the thyroid, so if you are hypo, that hormone goes into overdrive to help you out. I wouldn't be worried about normal lab values, but your doctor should review all your lab results anyway and talk to you about any concerning results.


Top
 Profile  
 
 Post subject: Re: Questions About Hypothyroidism
PostPosted: Sun May 19, 2013 11:40 am 
Offline
Fair trade, organic mistletoe
User avatar

Joined: Wed Oct 20, 2010 12:52 am
Posts: 3507
Location: Toronto
Yes, I'm worried because I am having classic hypo symptoms--of course those can also be symptoms of a million other things.

_________________
"I'd rather have dried catshit! I'd rather have astroturf! I'd rather have an igloo!"~Isa

"But really, anyone willing to dangle their baby in front of a crocodile is A-OK in my book."~SSD


Top
 Profile  
 
 Post subject: Re: Questions About Hypothyroidism
PostPosted: Sun May 19, 2013 1:55 pm 
Offline
Has it on Blue Vinyl
User avatar

Joined: Wed Jan 05, 2011 7:44 pm
Posts: 2144
Well, mine was mildly hypo, I think like 4.9 or something and the doc wasn't planning on treating, unless it stayed high AND I was having trouble getting pregnant. It went down on its own and I got pregnant no problem, so that was that. My friend has major hypothyroid issues and her medication was lowered too much and her TSH ended up at around 30! She is pregnant and that can cause some major issues, but she is seeing a high risk specialist. They had to up her meds, but it takes a while for those numbers to come down. She had bad symptoms. She said it felt like her skin was plastic-wrapped to her face. Also, before she was diagnosed, she was excessively tired all the time.


Top
 Profile  
 
 Post subject: Re: Questions About Hypothyroidism
PostPosted: Sun May 19, 2013 2:04 pm 
Offline
Fair trade, organic mistletoe
User avatar

Joined: Wed Oct 20, 2010 12:52 am
Posts: 3507
Location: Toronto
My main symptoms are unexplained weight gain, exhaustion, constantly sick (I've got my third cold in about a month!), cold all the time. It looks like I may be anemic, so that might explain a couple of those.

_________________
"I'd rather have dried catshit! I'd rather have astroturf! I'd rather have an igloo!"~Isa

"But really, anyone willing to dangle their baby in front of a crocodile is A-OK in my book."~SSD


Top
 Profile  
 
 Post subject: Re: Questions About Hypothyroidism
PostPosted: Sun May 19, 2013 2:18 pm 
Offline
Has it on Blue Vinyl
User avatar

Joined: Wed Jan 05, 2011 7:44 pm
Posts: 2144
Good luck with figuring it all out! Hope you start feeling better soon.


Top
 Profile  
 
 Post subject: Re: Questions About Hypothyroidism
PostPosted: Sun May 19, 2013 2:36 pm 
Offline
Attended Chelsea Clinton's Wedding

Joined: Thu Oct 25, 2012 8:14 pm
Posts: 196
Location: WA
The confusing part about tsh levels is a low number indicates hyperthyroidism not hypo. Also you have the exact opposite of symptoms of hyperthyroidism. Anemia makes more sense than hypothyroidism given your levels. You could seek out an endocrinologist for their opinion. It couldn't hurt. The endocrine system is tricky. I hope you feel better soon!

(I have had Hashimoto's thyroiditis, hypothyroidism, for 17 years.)


Top
 Profile  
 
 Post subject: Re: Questions About Hypothyroidism
PostPosted: Sat Jun 08, 2013 5:44 am 
Offline
Impressive boner
User avatar

Joined: Wed Oct 20, 2010 2:57 pm
Posts: 3998
Location: Nottingham.
j-dub wrote:
My main symptoms are unexplained weight gain, exhaustion, constantly sick (I've got my third cold in about a month!), cold all the time. It looks like I may be anemic, so that might explain a couple of those.


I've been experiencing similar symptoms over the last few months that I'm finding increasingly distressing. I'm exhausted and most days it seems I'm gaining weight, despite being more careful about what I eat and getting more cardio exercise. There are a host of other symptoms, such as palpitation, migraines and a lot of the ones listed online. I had some blood taken yesterday for testing for glucose, iron and thyroid function.


Top
 Profile  
 
 Post subject: Re: Questions About Hypothyroidism
PostPosted: Sat Jun 08, 2013 4:13 pm 
Offline
Should Write a Goddam Book Already
User avatar

Joined: Sun Oct 24, 2010 2:14 pm
Posts: 1063
Location: 'Burbs of California
Do you by any chance have any of the symptoms of hyperthyroidism? Some people do actually gain weight while hyperthyroid. I had Graves' diesease, and heart palpitations and hand tremors were my two clearest symptoms, but I also felt generally tired.


Top
 Profile  
 
 Post subject: Re: Questions About Hypothyroidism
PostPosted: Sat Jun 08, 2013 7:08 pm 
Offline
Not NOT A Furry
User avatar

Joined: Sat Oct 23, 2010 8:12 am
Posts: 525
Location: SF Bay Area
Your thyroid is probably spot on (I keep my levels at 1), unfortunately all the hypo symptoms can be so many other things, including stress unfortunately. If you are still concerned after the initial bloodwork keep with them in order to try to make yourself the healthiest person you can be :)

_________________
Killer Bunnies, Inc


Top
 Profile  
 
 Post subject: Re: Questions About Hypothyroidism
PostPosted: Sun Jun 09, 2013 10:01 am 
Offline
Impressive boner
User avatar

Joined: Wed Oct 20, 2010 2:57 pm
Posts: 3998
Location: Nottingham.
Do you mean to keep at the doctors to have further bloodwork done?

Re hyperthyroidism/Graves: I do have anxiety and palpitations sometimes, but I'd put that down to being carer for two people. I have been experiencing watery eyes and sensitivity to light recently. There are autoimmune conditions in my family.


Top
 Profile  
 
 Post subject: Re: Questions About Hypothyroidism
PostPosted: Wed Jun 26, 2013 10:41 am 
Offline
Impressive boner
User avatar

Joined: Wed Oct 20, 2010 2:57 pm
Posts: 3998
Location: Nottingham.
I had my blood tested for TSH, glucose and iron. Apparently they were all normal, but I didn't see any results so don't know anything more than that. I've just given blood for a full set of thyroid tests, including antibodies, so we'll see what happens. I hope I can draw this to a close soon, today is the second day this week that I've come home from work early and gone straight to bed.


Top
 Profile  
 
 Post subject: Re: Questions About Hypothyroidism
PostPosted: Wed Jun 26, 2013 7:03 pm 
Offline
Banned from Vegan Freaks.
User avatar

Joined: Tue Nov 02, 2010 6:59 pm
Posts: 389
Location: Portland
Are you on birth control? I had similar symptoms and was tested multiple times over the years for hypothyroid, but as soon as I stopped taking Depo it all went away. Wish my doctors would have mentioned that as a possibility! They always attributed my symptoms to stress when my tests came back normal.


Top
 Profile  
 
 Post subject: Re: Questions About Hypothyroidism
PostPosted: Sun Jul 14, 2013 9:44 am 
Offline
Bought 20lbs of vegan protein powder
User avatar

Joined: Tue Oct 19, 2010 6:37 pm
Posts: 7070
Location: NC for now
helbury wrote:
Do you by any chance have any of the symptoms of hyperthyroidism? Some people do actually gain weight while hyperthyroid. I had Graves' diesease, and heart palpitations and hand tremors were my two clearest symptoms, but I also felt generally tired.


Interesting! From WebMD:

Quote:
You may have no symptoms at all. Or:

You may feel nervous, moody, weak, or tired.
Your hands may shake, your heart may beat fast, or you may have problems breathing.
You may be hot and sweaty or have warm, red, itchy skin.
You may have more bowel movements than usual.
You may have fine, soft hair that is falling out.
You may lose weight even though you eat the same or more than usual.
If you have any of these symptoms, call your doctor. Without treatment, hyperthyroidism can lead to heart problems, bone problems, and a dangerous condition called thyroid storm.


I've had my thyroid tested a few times - in March 2010 my TSH was 1.9 and my free T4 was 1.16. In December of 2010 my TSH was 3.17. I have had a bisque of a time losing my pregnancy weight - remember that my baby is 6 1/2 years old. I am exhausted all the time. I got 9 hours of sleep last night, I've been up 3 hours, and I'd really like a nap. I have 1 cup of coffee a day. I do feel nervous, moody, weak, and tired, and my hands are usually shaky as well. My pulse is elevated. I am overly warm. I had blood drawn again on Thursday, so we'll see. I'm pretty sure my mom is hyperthyroid.

_________________
"T-shirts are not allowed in heaven, Karyn. They don't do casual Fridays." - Amandabear

"It's because I'm judging them. Harshly. Judgey McJudgerson." - mel c


Top
 Profile  
 
 Post subject: Re: Questions About Hypothyroidism
PostPosted: Sun Jul 14, 2013 3:20 pm 
Offline
Not NOT A Furry
User avatar

Joined: Sat Oct 23, 2010 8:12 am
Posts: 525
Location: SF Bay Area
appifanie wrote:
helbury wrote:
Do you by any chance have any of the symptoms of hyperthyroidism? Some people do actually gain weight while hyperthyroid. I had Graves' diesease, and heart palpitations and hand tremors were my two clearest symptoms, but I also felt generally tired.


Interesting! From WebMD:

Quote:
You may have no symptoms at all. Or:

You may feel nervous, moody, weak, or tired.
Your hands may shake, your heart may beat fast, or you may have problems breathing.
You may be hot and sweaty or have warm, red, itchy skin.
You may have more bowel movements than usual.
You may have fine, soft hair that is falling out.
You may lose weight even though you eat the same or more than usual.
If you have any of these symptoms, call your doctor. Without treatment, hyperthyroidism can lead to heart problems, bone problems, and a dangerous condition called thyroid storm.


I've had my thyroid tested a few times - in March 2010 my TSH was 1.9 and my free T4 was 1.16. In December of 2010 my TSH was 3.17. I have had a bisque of a time losing my pregnancy weight - remember that my baby is 6 1/2 years old. I am exhausted all the time. I got 9 hours of sleep last night, I've been up 3 hours, and I'd really like a nap. I have 1 cup of coffee a day. I do feel nervous, moody, weak, and tired, and my hands are usually shaky as well. My pulse is elevated. I am overly warm. I had blood drawn again on Thursday, so we'll see. I'm pretty sure my mom is hyperthyroid.


Those numbers aren't hyper I wouldn't worry too much about that until you get new numbers. The problem with thyroid issues is that there are so many symptoms, and they are all symptoms for everything else, even down to stress. 1.9 - 3.17 seems in an okay range, I prefer to be at 1 myself medicated with no thyroid but it's not considered hyper at all.

_________________
Killer Bunnies, Inc


Top
 Profile  
 
 Post subject: Re: Questions About Hypothyroidism
PostPosted: Sun Jul 14, 2013 5:25 pm 
Offline
Bought 20lbs of vegan protein powder
User avatar

Joined: Tue Oct 19, 2010 6:37 pm
Posts: 7070
Location: NC for now
I will update when I get the new numbers, of course.

_________________
"T-shirts are not allowed in heaven, Karyn. They don't do casual Fridays." - Amandabear

"It's because I'm judging them. Harshly. Judgey McJudgerson." - mel c


Top
 Profile  
 
 Post subject: Re: Questions About Hypothyroidism
PostPosted: Tue Aug 20, 2013 6:12 pm 
Offline
Kitchens Planning Manchester
User avatar

Joined: Wed Oct 20, 2010 4:12 pm
Posts: 2599
Location: MKE
*bump*

My doctor wants me to do a blood draw...two years ago my levels were at 4.9, and so she wants to check them now because I am so tired, always cold, get my periods approximately 55-60 days apart, and my hair has been falling out...which could all also be stress related, yay. I may have laughed at her when she asked about my stress levels, but I'm kind of nervous about getting the results back.

_________________
"I think I am going to turn into a chickpea." ~Dakini
Love is like a pineapple, sweet and undefinable ~ Piet Hein


Top
 Profile  
 
 Post subject: Re: Questions About Hypothyroidism
PostPosted: Mon Aug 26, 2013 9:21 am 
Offline
Not a creepy cheese pocket person
User avatar

Joined: Wed Oct 20, 2010 2:17 pm
Posts: 3936
Location: Austin
While some people really struggle with getting doses right, for most people with hypothyroidism, it's just remembering to pop a pill once a day. No big deal. And you'll feel sooo much better and more energetic within a week or two if that's what it is.


Top
 Profile  
 
 Post subject: Re: Questions About Hypothyroidism
PostPosted: Mon Aug 26, 2013 10:40 am 
Offline
Bought 20lbs of vegan protein powder
User avatar

Joined: Tue Oct 19, 2010 6:37 pm
Posts: 7070
Location: NC for now
My #s are totally fine. Apparently I may have been eating too few calories (see weight loss thread).

_________________
"T-shirts are not allowed in heaven, Karyn. They don't do casual Fridays." - Amandabear

"It's because I'm judging them. Harshly. Judgey McJudgerson." - mel c


Top
 Profile  
 
 Post subject: Re: Questions About Hypothyroidism
PostPosted: Mon Aug 26, 2013 1:34 pm 
Offline
Kitchens Planning Manchester
User avatar

Joined: Wed Oct 20, 2010 4:12 pm
Posts: 2599
Location: MKE
glad your numbers are good, appifanie! that is great that there is an easy fix.

_________________
"I think I am going to turn into a chickpea." ~Dakini
Love is like a pineapple, sweet and undefinable ~ Piet Hein


Top
 Profile  
 
 Post subject: Re: Questions About Hypothyroidism
PostPosted: Mon Aug 26, 2013 8:36 pm 
Offline
Bought 20lbs of vegan protein powder
User avatar

Joined: Tue Oct 19, 2010 6:37 pm
Posts: 7070
Location: NC for now
thanks and hopefully!

_________________
"T-shirts are not allowed in heaven, Karyn. They don't do casual Fridays." - Amandabear

"It's because I'm judging them. Harshly. Judgey McJudgerson." - mel c


Top
 Profile  
 
 Post subject: Re: Questions About Hypothyroidism
PostPosted: Fri Mar 14, 2014 12:33 pm 
Offline
Dying from Nooch Lung
User avatar

Joined: Wed Oct 20, 2010 7:14 pm
Posts: 3345
Location: NJ/Philadelphia
BUMP

A few weeks ago I went to Urgent Care because I was feeling overall crappy and run down with no real reason why because I wasn't sick with a cold or the flu. The doc said it looked like I might be anemic and they wanted to do some blood test. I finally got the results back and here's what they found.

B12 = OK
D = OK
Liver = OK
Kidneys = OK
Iron = Low but not anemic
Thyroid = High, level 4 (but I'm having a hard time figuring out what that means)

I made a follow-up appointment with my primary and she put me on a thyroid medication to lower my level. She said I should be between 1 and 2. Again, despite all of my questions I still don't have a very clear understanding of what specific thyroid test were done. I think if I call back and ask to speak with a nurse they might be able to help me better. I also have a gyno appt. scheduled in the next few weeks so I'm hoping they will have some insight as well.

I'm not sure that I had ever been tested for my thyroid before but I've basically felt like crepe my entire life and started rapidly gaining weight when I was 8 years old. No idea if kids can be effected by thyroid issues as well. But I'm really hoping that this medication will help me. I have to take it for a month and then get blood work done again to see if it's helping or not.

At the moment I am sick with bronchitis which is another one of my issues, I am always sick or feeling sickly in some way. Fingers crossed that once I kick this I can go back to working out and start feeling better.

Any words of wisdom PPK? I'm feeling mowed over by everything.

_________________
"Gnome kicking says a lot a man's character." - Babbette


Top
 Profile  
 
 Post subject: Re: Questions About Hypothyroidism
PostPosted: Fri Mar 14, 2014 12:38 pm 
Offline
Vegan Since Before There Were Vegetables
User avatar

Joined: Sun Sep 05, 2010 8:43 pm
Posts: 10461
Location: Astoria, NY by way of San Diego, CA
can you ask for a copy of your blood work?

i found some good patient friendly info on this website when i was doing research for a school project. here's a link to info about thyroid tests
http://www.thyroid.org/blood-test-for-thyroid/

_________________
I am not a troll. I am TELLING YOU THE ******GOD'S TRUTH****** AND YOU JUST DON'T WANT THE HEAR IT DO YOU?


Top
 Profile  
 
 Post subject: Re: Questions About Hypothyroidism
PostPosted: Fri Mar 14, 2014 12:46 pm 
Offline
Dying from Nooch Lung
User avatar

Joined: Wed Oct 20, 2010 7:14 pm
Posts: 3345
Location: NJ/Philadelphia
Interesting, Yes I will have to call and ask them to fax me a copy. It's really frustrating and strange to me why doctors won't take the time to talk to you. Or maybe I just see a crepe doctor!

_________________
"Gnome kicking says a lot a man's character." - Babbette


Top
 Profile  
 
 Post subject: Re: Questions About Hypothyroidism
PostPosted: Fri Mar 14, 2014 1:14 pm 
Offline
Built this city on rock and roll
User avatar

Joined: Wed Oct 20, 2010 1:58 pm
Posts: 1208
It probably means they tested your TSH (thyroid stimulating hormone) levels. The number 4 indicates that your levels are elevated and that elevation may be caused by hypothyroidism. My doctor said levels should ideally be between 0.5 and 2 ml/UL, but that seems to vary and is probably dependant on a lot of things.

I hope you can get them to talk to you and explain your results.


Top
 Profile  
 
Display posts from previous:  Sort by  
Post new topic Reply to topic  [ 60 posts ]  Go to page 1, 2, 3  Next

All times are UTC - 6 hours [ DST ]


Who is online

Users browsing this forum: No registered users and 3 guests


You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum

Search for:
Jump to:  
Powered by phpBB © 2000, 2002, 2005, 2007 phpBB Group
Template made by DEVPPL/ThatBigForum and fancied up by What Cheer